More information from your American Cancer Society
We have selected some related information that may also be helpful to you. Free copies of these materials may be ordered from our toll-free number, 1-800-227-2345, or you can read them online at www.cancer.org.
Genetic Testing: Patient Privacy and Discrimination Considerations – ACS Position Statement
Heredity and Cancer (also in Spanish)
Oncogenes, Tumor Suppressor Genes, and Cancer
National organizations and Web sites*
Along with the American Cancer Society, other sources of information and support include:
National Society of Genetic Counselors
Web site: www.nsgc.org
The “Consumer Information” link on the Web site offers detailed information on genetic counseling, questions to ask before genetic testing, a guide to collecting family history, info on genetic testing and genetic counselors, and a directory of genetic counselors.
National Cancer Institute
Toll-free number: 1-800-422-6237 (1-800-4-CANCER)
Web site: www.cancer.gov
A listing of professionals who offer services related to cancer genetics (cancer risk assessment, genetic counseling, genetic susceptibility testing, and others) can be found at: www.cancer.gov/cancertopics/genetics/directory.
Centers for Disease Control and Prevention (CDC)
Toll-free number: 1-800-232-4636 (1-800-CDC-INFO)
Web site: www.cdc.gov
Offers information on a wide range of topics, including genetics and disease prevention
A-T Children’s Project (Ataxia-Telangiectasia Children’s Project)
Toll-free number: 1-800-543-5728 (1-800-5-HELP-A-T)
Web site: www.atcp.org
This group is focused on finding a cure for ataxia-telangiectasia, a lethal genetic disease in children that causes loss of muscle control, cancer, and immune system problems.
Children’s Tumor Foundation (CTF)
Toll-free number: 1-800-323-7938
Web site: www.ctf.org
Offers information about the genetic disorder neurofibromatosis, and help finding medical, social, and genetic counseling
Colon Cancer Alliance
Telephone: 877-422-3030
Web site: www.ccalliance.org
Provides information on colorectal cancer, including genetics, symptoms, treatment, and more
David G. Jagelman Inherited Colorectal Cancer Registries
Toll-free number: I 1-800-223-2273, ext. 46470
Web site: www.clevelandclinic.org/registries
Has information on the colorectal cancer registries and how to join. Also, offers information on familial adenomatous polyposis (FAP), hereditary non-polyposis colorectal cancer (HNPCC), juvenile polyposis (JP), Puetz-Jegher’s Syndrome (PJS) and other inherited colon and rectum problems, as well as risk assessment, prevention, screening, treatment, and research.
No matter who you are, we can help. Contact us anytime, day or night, for information and support. Call us at 1-800-227-2345 or visit www.cancer.org.
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