More information from your American Cancer Society
We have selected some related information that may also be helpful to you. These materials may be ordered from our toll-free number, 1-800-227-2345. Some can be read online at www.cancer.org.
Children Diagnosed With Cancer: Dealing With Diagnosis (also available in Spanish)
Children Diagnosed With Cancer: Financial and Insurance Issues
Children Diagnosed With Cancer: Returning to School
After Diagnosis: A Guide for Patients and Families (also available in Spanish)
Cancer Information on the Internet
Children Diagnosed With Cancer: Late Effects of Cancer Treatment
Clinical Trials: What You Need to Know
Talking With Your Doctor (also available in Spanish)
Health Professionals Associated With Cancer Care
Where to Turn: Patient and Family Support Program Overview (brochure for families, also available in Spanish)
We also have detailed information available about most types of childhood cancer. Call us or check our Web site.
Books from your American Cancer Society
The following books are available from the American Cancer Society. Call us to ask about costs or to place your order.
Imagine What’s Possible: Use the Power of Your Mind to Take Control of Your Life During Cancer (for children with cancer in grades 4 through 6)
Caregiving: A Step-By-Step Resource for Caring for the Person With Cancer at Home (for adults taking care of someone with cancer at home)
National organizations and Web sites*
Along with the American Cancer Society, other sources of information and support include:
Web sites for adults
American Childhood Cancer Organization (ACCO)
Toll-free number: 1-800-366-2223
Web site: http://acco.org
Web site has sub-sections just for children and teens with cancer and their siblings, as well as support for adults dealing with children with cancer and parent support groups. Note that some of the books for children listed below are available from this group.
CureSearch (National Childhood Cancer Foundation and Children’s Oncology Group)
Toll-free number: 1-800-458-6223
Web site: www.curesearch.org
Provides up-to-date information about childhood cancer from pediatric cancer experts. Has sections on the Web site for patients, families, and friends to help guide them on how to support the child with cancer.
National Cancer Institute
Toll-free number: 1-800-4-CANCER (1-800-422-6237)
TTY: 1-800-332-8615
Web site: www.cancer.gov
Provides accurate, up-to-date information about cancer to patients and their families, including clinical trials information. Offers a special booklet for teen siblings of a child with cancer at: www.cancer.gov/cancertopics/when-your-sibling-has-cancer
Ronald McDonald House Charities (RMHC)
Telephone: 630-623-7048
Web site: www.rmhc.org/
Provides low-cost or no-cost temporary lodging for families of seriously ill children being treated away from home. Must be referred by medical staff or social workers from the child’s treatment center.
The National Children’s Cancer Society, Inc.
Toll-free number: 1-800-5-FAMILY (1-800-532-6459)
Web site: www.children-cancer.org
Services include an online support network for parents of children with cancer, educational materials, and financial assistance for treatment-related expenses.
National Dissemination Center for Children with Disabilities (NICHCY)
Toll-free number: 1-800-695-0285 (also for TTY)
Web site: www.nichcy.org
Provides information about disabilities and disability-related issues for families, educators, and other professionals; special focus on educational rights and school issues
Cancer.net
Web site: www.cancer.net/patient/Coping
Cancer information from the American Society of Clinical Oncology. Online, choose “Age-specific information,” then either “teens” or “children” to find more about coping with cancer in children or adolescents.
CaringBridge
Telephone: 651-789-2300
Web site: www.caringbridge.org
Offers free, personal Web sites that help you stay connected to family and friends during illness, treatment, and recovery; lets patients and caregivers keep loved ones informed.
Hair Club for Kids
Toll-free number: 1-800-269-7384 (If you reach voicemail, leave a message for a call back.)
Web site: www.hairclub.com/hc_for_kids.php
Offers free hair restoration services to children ages 6 through 17 who have hair loss due to cancer treatments.
Fertile Hope
Toll-free number: 1-866-965-7205
Web site: www.fertilehope.org
Offers information on having children in the future to cancer patients whose medical treatments cause the risk of infertility. Those who meet financial and other requirements may also qualify for discounted fertility services.
National Organization for Rare Disorders
Toll-free number: 1-800-999-6673
TDDY number: 203-797-9590
Web site: www.rarediseases.org
A group of more than 2,000 non-profit voluntary health organizations serving adults and children with rare “orphan” disorders. NORD keeps data on resources and refers to organizations only (they do not refer people to healthcare providers or treatment facilities).
Web sites for teens and children
2bMe
Web site: www.2bme.org
2bMe is part of Look Good...Feel Better for Teens. For those ages 13 through 17, it gives information on many appearance-related, social, and nutritional side effects of treatment.
Beyond the Cure (part of the National Children’s Cancer Society for teens)
Web site: www.beyondthecure.org
Support and education for survivors of childhood cancer and their families
Group Loop (a subsite of the Wellness Community just for teens)
Toll-free number: 1-888-793-9355
Web site: www.grouploop.org
An online place for teens with cancer or teens who know someone with cancer to connect with other teens – away from the pressures of classes, responsibilities, and treatment schedules. Group Loop has online support groups, chat rooms, information, and more.
Starlight Children’s Foundation
Toll-free number: 1-800-315-2580
Web site: www.starlight.org
Web site has animated stories and interactive programs to teach kids about chemo and procedures that may be done in the hospital; provides a safe, monitored online support group for teens with cancer.
Cancer Kids
Web site: www.cancerkids.com
An online-only resource designed to help kids, from ages 5 to 11, learn about cancer in a fun and interactive manner.
Cancer Really Sucks
Web site: www.cancerreallysucks.org
An internet-only resource designed FOR teens BY teens who have loved ones facing cancer. Has answers and coping strategies to help deal with the emotions linked to a cancer diagnosis; “Q&A with a Cancer Survivor” offers a monitored, safe format for teens to post stories about their situations and ask other teens questions.
Teens Living with Cancer
Web site: www.teenslivingwithcancer.org/
An online-only resource dedicated to teens coping with a cancer diagnosis and treatment. It focuses on teen issues and provides resources to support teens, their families, and friends.
I’m too young for this
Web site: http://i2y.com
Social networking organization for young adult cancer survivors and care providers that offers support to help improve quality of life for young adults (ages 15 to 39) affected by cancer.
SuperSibs!
Toll-free number: 1-888-417-4704
Web site: www.supersibs.org
Supports, honors, and recognizes 4- to 18-year-old brothers and sisters of children diagnosed with cancer so they may face the future with strength, courage, and hope.
Other publications*
Books for adults
100 Questions & Answers About Your Child’s Cancer, by William L. Carroll and Jessica Reisman. 2004.
Cancer & Self-Help: Bridging the Troubled Waters of Childhood Illness, by Mark A. Chester and Barbara K. Chesney. University of Wisconsin Press, 1995.
Care for Children and Adolescents with Cancer: Questions and Answers, National Cancer Institute. Available at www.cancer.gov/cancertopics/factsheet/NCI/children-adolescents or call 1-800-422-6237.
Childhood Brain and Spinal Cord Tumors: A Guide for Families, Friends, and Caregivers, by Tania Shiminski-Maher, Patsy McGuire Cullen, and Maria Sansalone. O’Reilly and Associates, 2001.
Childhood Cancer: A Parent’s Guide to Solid Tumor Cancers, by Honna Janes-Hodder and Nancy Keene. O’Reilly and Associates, 1999.
Childhood Cancer Survivors: A Practical Guide to Your Future, by Nancy Keene, Wendy Hobbie, and Kathy Ruccione. O’Reilly and Associates, 2000.
Children with Cancer: A Comprehensive Reference Guide for Parents (Revised and updated edition), by Jeanne Munn Bracken. Oxford University Press, 2010.
Educating The Child With Cancer: A Guide for Parents and Teachers, edited by Nancy Keene. American Childhood Cancer Organization, 2003. Can be ordered from http://acco.org/.
Living with Childhood Cancer: A Practical Guide to Help Families Cope, by Leigh A. Woznick and Carol D. Goodheart. American Psychological Association, 2002.
Shelter from the Storm: Caring for a Child with a Life-Threatening Condition, by Joanne Hilden, MD. Perseus, 2002.
When Bad Things Happen to Good People, by Harold Kushner. First Anchor, 2004.
When Someone You Love is Being Treated for Cancer, National Cancer Institute. Available at www.cancer.gov/cancertopics/when-someone-you-love-is-treated, or call 1-800-422-6237.
Young People with Cancer: A Handbook for Parents, National Cancer Institute, 2003. Available at www.cancer.gov/cancertopics/youngpeople, or call 1-800-422-6237.
Your Child in the Hospital: A Practical Guide for Parents, 2nd Ed., by Nancy Keene and Rachel Prentice. O’Reilly Media, 1999. (Also available in Spanish.)
Books for children
Although these books are intended for children, younger kids are helped more when an adult reads with and helps the child reflect about what different parts of the book mean to the child.
Chemo, Craziness and Comfort: My Book about Childhood Cancer, by Nancy Keene. American Childhood Cancer Organization, 2002. Can be ordered from http://acco.org/. For ages 6 to 12.
Childhood Cancer Survivors: A Practical Guide to Your Future (2nd Ed.), by Kathy Ruccione, Nancy Keene, and Wendy Hobbie. 2006. For older teens.
Going to the Hospital, by Fred Rogers. Paperstar Book. 1997. For ages 4 to 8.
Little Tree: A Story for Children with Serious Medical Problems, by Joyce C. Mills. Magination Press, 2003. For ages 4 to 8.
My Book for Kids with Cansur [sic]: A Child’s Autobiography of Hope, by Jason Gaes. Viking Penguin, 1998. For ages 4 to 8.
What About Me? When Brothers and Sisters Get Sick, by Allan Peterkin and Frances Middendorf. Magination Press, 1992. For brothers and sisters of a child with cancer. For ages 4 to 8.
When Someone Has a Very Serious Illness: Children can learn to cope with loss and change, by Marge Heegaard. Woodland Press, 1991. For ages 6 to 12.
Why, Charlie Brown, Why? A Story About What Happens When a Friend is Very Ill, by Charles M. Schultz. Ballantine Publishing Group, 1990. For ages 6 to 12.
No matter who you are, we can help. Contact us anytime, day or night, for information and support. Call us at 1-800-227-2345 or visit www.cancer.org.
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