Brain and Spinal Cord Tumors in Children

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Additional resources for brain and spinal cord tumors in children

More information from your American Cancer Society

We have a lot more information that you might find helpful. Explore www.cancer.org or call our National Cancer Information Center toll-free number, 1-800-227-2345. We’re here to help you any time, day or night.

National organizations and websites*

Along with the American Cancer Society, other sources of information and support include:

Websites for parents and adults

American Brain Tumor Association
Toll-free number: 1-800-886-2282 (1-800-886-ABTA)
Website: www.abta.org

    Has information about brain tumors in children and teens as well as adults, by web and phone. Also has lists of support groups across the US.

Children’s Brain Tumor Foundation
Toll-free number: 1-866-228-4673 (1-866-228-HOPE)
Website: www.cbtf.org

    Offers information, counseling, and survivorship information, as well as online support from families who’ve been there. Books for kids and parents also available in Spanish.

National Brain Tumor Society
Toll-free number: 1-800-934-2873 (1-800-934-CURE)
Website: www.braintumor.org

    Call or choose “information” on the website home page to get lists of treatment centers, learn about living with brain tumor, manage common problems, and find resources for caregivers and family members. Also has information in Spanish.

American Childhood Cancer Organization (formerly Candlelighters)
Toll-free number: 1-855-858-2226
Website: www.acco.org

    Offers information for children and teens with cancer, their siblings, and adults dealing with children with cancer. Also offers books and a special kit for children newly diagnosed with cancer, as well as some local support groups.

Children’s Oncology Group
Website: www.childrensoncologygroup.org

    Provides key information from the world’s largest organization devoted to childhood cancer research to help support children and their families from the time of diagnosis, through treatment, and beyond.

CureSearch for Children’s Cancer
Toll-free number: 1-800-458-6223
Website: www.curesearch.org

    Provides up-to-date information about childhood cancer from pediatric cancer experts. Has sections on the Web site for patients, families, and friends to help guide them on how to support the child with cancer.

National Cancer Institute
Toll-free number: 1-800-422-6237 (1-800-4-CANCER)
Website: www.cancer.gov

National Children’s Cancer Society, Inc.
Toll-free number: 1-800-532-6459 (1-800-5-FAMILY)
Website: www.children-cancer.org

    Services include an online support network for parents of children with cancer, educational materials, and financial assistance for treatment-related expenses.

Websites for teens and children

Starlight Children’s Foundation
Toll-free number: 1-310-479-1212
Website: www.starlight.org

    Website has animated stories and interactive programs to teach kids about chemo and procedures that may be done in the hospital; also provides a safe, monitored online support group for teens with cancer.

Group Loop (a subsite of the Cancer Support Community just for teens)
Toll-free number: 1-888-793-9355
Website: www.grouploop.org

    An online place for teens with cancer or teens who know someone with cancer to connect with other teens – away from the pressures of classes, responsibilities, and treatment schedules. Has online support groups, chat rooms, information, and more.

Teens Living with Cancer
Website: www.teenslivingwithcancer.org

    An online-only resource dedicated to teens coping with a cancer diagnosis and treatment. It focuses on teen issues and provides resources to support teens, their families, and friends.

SuperSibs! powered by Alex’s Lemonade Stand
Toll-free number: 1-866-333-1213
Website: www.supersibs.org

    Supports, honors, and recognizes brothers and sisters of children diagnosed with cancer so they may face the future with strength, courage, and hope. Alex’s Lemonade Stand is restarting SuperSibs in 2014 so there may be some delays with resuming support services.

*Inclusion on this list does not imply endorsement by the American Cancer Society.

No matter who you are, we can help. Contact us anytime, day or night, for information and support. Call us at 1-800-227-2345 or visit www.cancer.org.


Last Medical Review: 08/12/2014
Last Revised: 01/21/2016