Brain and Spinal Cord Tumors in Children

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Other Resources and References TOPICS

Additional resources for brain and spinal cord tumors

More information from your American Cancer Society

Here is more information you might find helpful. You also can order free copies of our documents from our toll-free number, 1-800-227-2345, or read them on our Web site, www.cancer.org.

Children with cancer

Children Diagnosed With Cancer: Dealing with Diagnosis (also available in Spanish)

Pediatric Cancer Centers (also available in Spanish)

Children Diagnosed With Cancer: Understanding the Health Care System (also available in Spanish)

Children Diagnosed With Cancer: Financial and Insurance Issues

Children Diagnosed With Cancer: Returning to School

Children Diagnosed With Cancer: Late Effects of Cancer Treatment

Coping with cancer

After Diagnosis: A Guide for Patients and Families (also available in Spanish)

Family and Medical Leave Act (FMLA)

Nutrition for Children with Cancer (also available in Spanish)

What Happened to You, Happened to Me (children’s booklet)

When Your Brother or Sister Has Cancer (children’s booklet)

When Your Child’s Treatment Ends: A Guide for Families (booklet)

Cancer treatment information

Understanding Cancer Surgery: A Guide for Patients and Families (also available in Spanish)

Understanding Chemotherapy: A Guide for Patients and Families (also available in Spanish)

Understanding Radiation Therapy: A Guide for Patients and Families (also available in Spanish)

Clinical Trials: What You Need to Know

Fertility and Women With Cancer

Fertility and Men With Cancer

Books

The following books are available from the American Cancer Society. Call us at 1-800-227-2345 to ask about costs or to place your order.

For family and friends of the child

American Cancer Society Complete Guide to Family Caregiving, Second Edition

Because... Someone I Love Has Cancer (workbook for kids age 6-12 who have a loved one with cancer)

Jacob Has Cancer: His Friends Want to Help (coloring book for a child with a friend who has cancer)

For the child with cancer

Imagine What’s Possible: Use the Power of Your Mind to Take Control of Your Life During Cancer (grades 4 through 6)

Let My Colors Out (picture book for ages 5 to 10)

The Long and the Short of It: A Tale About Hair (ages 7 and up)

National organizations and Web sites*

In addition to the American Cancer Society, others sources of patient information and support include:

Web sites for parents and adults

American Brain Tumor Association
Toll-free number: 1-800-886-2282 (1-800-886-ABTA)
Web site: www.abta.org

    Information about brain tumors in children and adolescents as well as adults, by Web and phone.

American Childhood Cancer Organization (formerly Candlelighters)
Toll-free number: 1-855-858-2226
Web site: www.acco.org

    Offers information for children and teens with cancer, their siblings, and adults dealing with children with cancer. Also offers books and a special kit for children newly diagnosed with cancer, as well as some local support groups.

Children’s Brain Tumor Foundation
Toll-free number: 1-866-228-HOPE (1-866-228-4673)
Web site: www.cbtf.org

    Offers information, counseling, and survivorship information, as well as online support from families who’ve been there. Books for kids and parents also available in Spanish.

Children’s Oncology Group
Web site: www.childrensoncologygroup.org

    Provides key information from the world’s largest organization devoted to childhood cancer research to help support children and their families from the time of diagnosis, through treatment, and beyond.

CureSearch for Children’s Cancer
Toll-free number: 1-800-458-6223
Web site: www.curesearch.org

    Provides up-to-date information about childhood cancer from pediatric cancer experts. Has sections on the Web site for patients, families, and friends to help guide them on how to support the child with cancer.

National Cancer Institute
Toll-free number: 1-800-4-CANCER (1-800-422-6237)
Web site: www.cancer.gov

National Children’s Cancer Society, Inc.
Toll-free number: 1-800-5-FAMILY (1-800-532-6459)
Web site: www.children-cancer.org

    Services include an online support network for parents of children with cancer, educational materials, and financial assistance for treatment-related expenses.

Web sites for teens and children

Starlight Children’s Foundation
Toll-free number: 1-800-315-2580
Web site: www.starlight.org

    Web site has animated stories and interactive programs to teach kids about chemo and procedures that may be done in the hospital; also provides a safe, monitored online support group for teens with cancer.

Group Loop (a subsite of the Cancer Support Community just for teens)
Toll-free number: 1-888-793-9355
Web site: www.grouploop.org

    An online place for teens with cancer or teens who know someone with cancer to connect with other teens – away from the pressures of classes, responsibilities, and treatment schedules. Has online support groups, chat rooms, information, and more.

Cancer Kids
Web site: www.cancerkids.com

    An online-only resource designed to help kids, from ages 5 to 11, learn about cancer in a fun and interactive manner.

Teens Living with Cancer
Web site: www.teenslivingwithcancer.org

    An online-only resource dedicated to teens coping with a cancer diagnosis and treatment. It focuses on teen issues and provides resources to support teens, their families, and friends.

SuperSibs!
Toll-free number: 1-888-417-4704
Web site: www.supersibs.org

    Supports, honors, and recognizes 4- to 18-year-old brothers and sisters of children diagnosed with cancer so they may face the future with strength, courage, and hope.

*Inclusion on this list does not imply endorsement by the American Cancer Society.

Other publications*

For adults

100 Questions & Answers About Your Child’s Cancer, by William L. Carroll and Jessica Reisman. Jones and Bartlett Publishers, 2004.

Cancer & Self-Help: Bridging the Troubled Waters of Childhood Illness, by Mark A. Chester and Barbara K. Chesney. University of Wisconsin Press, 1995.

Care for Children and Adolescents with Cancer. National Cancer Institute, 2008. Available at: www.cancer.gov/cancertopics/factsheet/NCI/children-adolescents or call 1-800-422-6237.

Childhood Brain & Spinal Cord Tumors: A Guide for Families, Friends, and Caregivers, by Tania Shiminski-Maher, Patsy McGuire Cullen, and Maria Sansalone. O’Reilly and Associates, 2001.

Childhood Cancer: A Parent’s Guide to Solid Tumor Cancers, 2nd ed. by Honna Janes-Hodder and Nancy Keene. O'Reilly and Associates, 2002.

Childhood Cancer: A Handbook from St Jude Children’s Research Hospital, by Grant Steen and Joseph Mirro (editors). Perseus Publishing, 2000.

Childhood Cancer Survivors: A Practical Guide to Your Future, by Nancy Keene, Wendy Hobbie, and Kathy Ruccione. O’Reilly and Associates, 2000.

Children with Cancer: A Comprehensive Reference Guide for Parents, by Jeanne Munn Bracken. Oxford University Press, 2010.

Educating the Child With Cancer: A Guide for Parents and Teachers, edited by Nancy Keene. Candlelighters Childhood Cancer Foundation, 2003.

Living with Childhood Cancer: A Practical Guide to Help Families Cope, by Leigh A. Woznick and Carol D. Goodheart. American Psychological Association, 2002.

Surviving Childhood Cancer: A Guide for Families, by Margo Joan Fromer. Published by New Harbinger Publications, 1998.

When Bad Things Happen to Good People, by Harold Kushner. First Anchor, 2004.

When Someone You Love Is Being Treated for Cancer. National Cancer Institute, 2012. Available at: www.cancer.gov/cancertopics/coping/when-someone-you-love-is-treated, or call 1-800-422-6237.

Young People with Cancer: A Handbook for Parents. National Cancer Institute, 2003. Available at: www.cancer.gov/cancertopics/coping/youngpeople, or call 1-800-422-6237.

Your Child in the Hospital: A Practical Guide for Parents (2nd Ed.), by Nancy Keene. Published by O’Reilly & Associates. 1999. (Also available in Spanish.)

Books for teens and children

Although these books are intended for children, younger kids are helped more when an adult reads with and helps the child reflect about what different parts of the book mean to the child.

Chemo, Craziness and Comfort: My Book about Childhood Cancer, by Nancy Keene. Published by Candlelighters Childhood Cancer Foundation, 2002. Can be ordered from www.candlelighters.org. For ages 6 to 12.

Childhood Cancer Survivors: A Practical Guide to Your Future (2nd Edition), by Kathy Ruccione, Nancy Keene, and Wendy Hobbie. Patient Centered Guides, 2006. For older teens.

Going to the Hospital, by Fred Rogers. Paperstar Book, 1997. For ages 4 to 8.

Little Tree: A Story for Children with Serious Medical Problems, by Joyce C. Mills. Published by Magination Press, 2003. For ages 4 to 8.

Living Well with My Serious Illness, by Marge Heegaard. Fairview Press, 2003. For ages 8 to 12.

My Book for Kids with Cansur [sic], by Jason Gaes. Published by Viking Penguin, 1998. For ages 4 to 8.

What About Me? When Brothers and Sisters Get Sick, by Allan Peterkin and Frances Middendorf. Magination Press, 1992. For brothers and sisters (ages 4 to 8) of a child with cancer.

When Someone Has a Very Serious Illness: Children Can Learn to Cope with Loss and Change, by Marge Heegaard. Published by Woodland Press, 1991. For ages 6 to 12.

When Your Brother or Sister Has Cancer: A Guide for Teens, National Cancer Institute, 2011. Available at www.cancer.gov/cancertopics/coping/when-your-parent-has-cancer, or call 1-800-422-6237.

Why, Charlie Brown, Why? A Story About What Happens When a Friend Is Very Ill, by Charles M. Schultz. Ballantine Publishing Group, 1990. For ages 6 to 12.

*Inclusion on this list does not imply endorsement by the American Cancer Society.

No matter who you are, we can help. Contact us anytime, day or night, for information and support. Call us at 1-800-227-2345 or visit www.cancer.org.


Last Medical Review: 03/22/2013
Last Revised: 01/31/2014