Additional resources for brain and spinal cord tumors in children
More information from your American Cancer Society
Here is more information you might find helpful. You also can order free copies of our documents from our toll-free number, 1-800-227-2345, or read them on our website, www.cancer.org.
Children with cancer
Children Diagnosed With Cancer: Dealing with Diagnosis (also in Spanish)
Pediatric Cancer Centers (also in Spanish)
Children Diagnosed With Cancer: Understanding the Health Care System (also in Spanish)
Talking With Your Doctor (also in Spanish)
Coping with cancer
After Diagnosis: A Guide for Patients and Families (also in Spanish)
Family and Medical Leave Act (FMLA) (also in Spanish)
Nutrition for Children with Cancer (also in Spanish)
What Happened to You, Happened to Me (children’s booklet)
When Your Brother or Sister Has Cancer (children’s booklet)
When Your Child’s Treatment Ends: A Guide for Families (booklet)
Cancer treatment information
Understanding Cancer Surgery: A Guide for Patients and Families (also in Spanish)
A Guide to Chemotherapy (also in Spanish)
Understanding Radiation Therapy: A Guide for Patients and Families (also in Spanish)
Cancer treatment side effects
Your American Cancer Society also has books that you might find helpful. Call us at 1-800-227-2345 or visit our bookstore online at cancer.org/bookstore to find out about costs or to place an order.
National organizations and websites*
Along with the American Cancer Society, other sources of information and support include:
Websites for parents and adults
American Brain Tumor Association
Toll-free number: 1-800-886-2282 (1-800-886-ABTA)
Has information about brain tumors in children and teens as well as adults, by web and phone. Also has lists of support groups across the US.
Children’s Brain Tumor Foundation
Toll-free number: 1-866-228-4673 (1-866-228-HOPE)
Offers information, counseling, and survivorship information, as well as online support from families who’ve been there. Books for kids and parents also available in Spanish.
National Brain Tumor Society
Toll-free number: 1-800-934-2873 (1-800-934-CURE)
Call or choose “information” on the website home page to get lists of treatment centers, learn about living with brain tumor, manage common problems, and find resources for caregivers and family members. Also has information in Spanish.
American Childhood Cancer Organization (formerly Candlelighters)
Toll-free number: 1-855-858-2226
Offers information for children and teens with cancer, their siblings, and adults dealing with children with cancer. Also offers books and a special kit for children newly diagnosed with cancer, as well as some local support groups.
Children’s Oncology Group
Provides key information from the world’s largest organization devoted to childhood cancer research to help support children and their families from the time of diagnosis, through treatment, and beyond.
CureSearch for Children’s Cancer
Toll-free number: 1-800-458-6223
Provides up-to-date information about childhood cancer from pediatric cancer experts. Has sections on the Web site for patients, families, and friends to help guide them on how to support the child with cancer.
National Cancer Institute
Toll-free number: 1-800-422-6237 (1-800-4-CANCER)
Provides accurate, up-to-date information about cancer for patients and their families, including clinical trials information. Offers a special booklet for teen siblings of a child with cancer at: www.cancer.gov/cancertopics/when-your-sibling-has-cancer.
National Children’s Cancer Society, Inc.
Toll-free number: 1-800-532-6459 (1-800-5-FAMILY)
Services include an online support network for parents of children with cancer, educational materials, and financial assistance for treatment-related expenses.
Websites for teens and children
Starlight Children’s Foundation
Toll-free number: 1-800-315-2580
Website has animated stories and interactive programs to teach kids about chemo and procedures that may be done in the hospital; also provides a safe, monitored online support group for teens with cancer.
Group Loop (a subsite of the Cancer Support Community just for teens)
Toll-free number: 1-888-793-9355
An online place for teens with cancer or teens who know someone with cancer to connect with other teens – away from the pressures of classes, responsibilities, and treatment schedules. Has online support groups, chat rooms, information, and more.
An online-only resource designed to help kids, from ages 5 to 11, learn about cancer in a fun and interactive manner.
Teens Living with Cancer
An online-only resource dedicated to teens coping with a cancer diagnosis and treatment. It focuses on teen issues and provides resources to support teens, their families, and friends.
SuperSibs! powered by Alex’s Lemonade Stand
Toll-free number: 1-866-333-1213
Supports, honors, and recognizes brothers and sisters of children diagnosed with cancer so they may face the future with strength, courage, and hope. Alex’s Lemonade Stand is restarting SuperSibs in 2014 so there may be some delays with resuming support services.
No matter who you are, we can help. Contact us anytime, day or night, for information and support. Call us at 1-800-227-2345 or visit www.cancer.org.
Last Medical Review: 08/12/2014
Last Revised: 08/24/2014