For many women with breast cancer, treatment may remove or destroy the cancer. Completing treatment can be both stressful and exciting. You may be relieved to finish treatment, but find it hard not to worry about cancer coming back. (When cancer comes back after treatment, it is called recurrence.) This is a very common concern in people who have had cancer.
It may take a while before your fears lessen. But it may help to know that many cancer survivors have learned to accept this uncertainty and are living full lives. Living with Uncertainty: The Fear of Cancer Recurrence gives more detailed information on this.
For other women, the cancer may never go away completely. They may get regular treatments with chemotherapy (chemo), radiation, or other treatments to try to help keep the cancer in check. Learning to live with cancer that does not go away can be hard and stressful. It has its own type of uncertainty. When Cancer Doesn't Go Away talks more about this.
After your treatment is over, ongoing follow-up is very important. During these visits, your doctors will ask about symptoms and do a physical exam. These visits will be scheduled more often at first, and then less often as time goes by. Unless you have had both breasts removed, you will get regular mammograms. Blood tests and imaging studies (like CT scans or MRIs), though, are not a standard part of follow-up for early breast cancer. These tests may only be ordered if you are having problems. Follow-up is needed to watch for treatment side effects and to check for cancer that has come back or spread.
If you are taking tamoxifen or toremifene, you should have a pelvic exam every year. Be sure to tell your doctor right away if you have abnormal vaginal bleeding because these drugs can increase the risk of uterine cancer. If you are taking an aromatase inhibitor, your doctor might want to have your bone density checked.
Almost any cancer treatment can have side effects. Some may last for a few weeks or months, but others can be permanent. Please tell your cancer care team about any symptoms or side effects that bother you so they can help you manage them. Use this time to ask your health care team questions and discuss any concerns you might have.
If anything suggests that the cancer might have come back, the doctor will want to do more tests. If cancer does come back, the treatment will depend on the place of the cancer and what treatments you've had before. Treatment could be surgery, radiation, hormone therapy, targeted therapy, chemo, or some combination of these.
It is also important to keep health insurance. While you hope your cancer won't come back, it could happen. If it does, you don't want to have to worry about paying for treatment. Should your cancer come back, When Your Cancer Comes Back: Cancer Recurrence helps you manage and cope with this phase of your treatment.
Last Revised: 01/14/2016