Genetic Testing: What You Need to Know

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More information from your American Cancer Society

We have some related information that may also be helpful to you. Free copies of these materials may be ordered from our toll-free number, 1-800-227-2345, or you can read them online at

Informed Consent (also in Spanish)

Family Cancer Syndromes

Genes and Cancer

National organizations and websites*

Along with the American Cancer Society, other sources of information and support include:

National Society of Genetic Counselors

    The “Consumer Information” link on the website offers detailed information on genetic counseling, questions to ask before genetic testing, a guide to collecting family history, info on genetic testing and genetic counselors, and a directory of genetic counselors.

National Cancer Institute
Toll-free number: 1-800-422-6237 (1-800-4-CANCER)
TTY: 1-800-332-8615

Hereditary Cancer Center (HCC)
Toll-free number: 1-800-648-8133

    Maintains the Early Detection Registry Network (EDRN), a nationwide registry where any carrier of a cancer genetic mutation may register to be invited to participate in appropriate research studies for their specific genetic mutation.

* Inclusion on this list does not imply endorsement by the American Cancer Society.

No matter who you are, we can help. Contact us anytime, day or night, for information and support. Call us at 1-800-227-2345 or visit

Last Medical Review: 10/18/2013
Last Revised: 03/11/2015