Castleman Disease

+ -Text Size

Other Resources and References TOPICS

Additional resources for Castleman disease

More information from your American Cancer Society

We have some related information that may also be helpful to you. These materials may be viewed on our website or ordered from our toll-free number, 1-800- 227-2345.

Understanding Cancer Surgery: A Guide for Patients and Families (also available in Spanish)

A Guide to Chemotherapy (also available in Spanish)

Understanding Radiation Therapy: A Guide for Patients and Families (also available in Spanish)

Cancer Immunotherapy

Clinical Trials: What You Need to Know

HIV, AIDS, and Cancer

Non-Hodgkin Lymphoma

Your American Cancer Society also has books that you might find helpful. Call us at 1-800-227-2345 or visit our bookstore online at to find out about costs or to place an order.

National organizations and websites*

Along with the American Cancer Society, other sources of information and support include:*

National Organization for Rare Disorders (NORD)
Phone number: 1-203-744-0100
Toll-free number: 1-800-999-6673 (voicemail only)

    Offers a rare disease database, including information on Castleman disease, and some patient assistance programs for specific illnesses. They also offer referrals to other organizations, resources, and support groups for rare diseases.

International Castleman’s Disease Organization

    Offers information and resources for people with Castleman Disease

*Inclusion on this list does not imply endorsement by the American Cancer Society.

No matter who you are, we can help. Contact us anytime, day or night, for information and support. Call us at 1-800-227-2345 or visit

Last Medical Review: 07/07/2014
Last Revised: 07/07/2014