Castleman Disease

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Additional resources for Castleman disease

More information from your American Cancer Society

We have a lot more information that you might find helpful. Explore or call our National Cancer Information Center toll-free number, 1-800-227-2345. We’re here to help you any time, day or night.

National organizations and websites*

Along with the American Cancer Society, other sources of information and support include:*

National Organization for Rare Disorders (NORD)
Phone number: 1-203-744-0100
Toll-free number: 1-800-999-6673 (voicemail only)

    Offers a rare disease database, including information on Castleman disease, and some patient assistance programs for specific illnesses. They also offer referrals to other organizations, resources, and support groups for rare diseases.

Castleman Disease Collaborative Network

    Offers information and resources for people with Castleman Disease

*Inclusion on this list does not imply endorsement by the American Cancer Society.

No matter who you are, we can help. Contact us anytime, day or night, for information and support. Call us at 1-800-227-2345 or visit

Last Medical Review: 07/07/2014
Last Revised: 05/23/2016