Castleman Disease

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What Is Castleman Disease? TOPICS

What are the key statistics about Castleman disease?

We don't know how many people are diagnosed with Castleman disease (CD) each year. The National Cancer Institute has a program that keeps track of how many people have each type of cancer, but because CD is not a cancer it is not included in this program.

We do know that CD is rare, especially in people who are otherwise healthy. It is much more likely to occur in people infected with HIV. Over the past 20 years, as the number of people with HIV infection has increased, the number of people diagnosed with CD has also been increasing. Modern anti-viral treatments have helped people with HIV live much longer, but these drugs do not seem to lower the chance of getting CD.

CD can affect children as well as adults. Younger people are more likely to have the localized form. Older adults and those with HIV infection are more likely to have the multicentric form.

Last Medical Review: 06/11/2012
Last Revised: 04/24/2014