Castleman Disease

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Treating Castleman Disease TOPICS

Clinical trials for Castleman disease

You may have had to make a lot of decisions since you’ve been told you have Castleman disease (CD). One of the most important decisions you will make is choosing which treatment is best for you. You may have heard about clinical trials being done for CD. Or maybe someone on your health care team has mentioned a clinical trial to you.

Clinical trials are carefully controlled research studies that are done with patients who volunteer for them. They are done to learn more about promising new treatments or procedures.

Clinical trials are one way to get state-of-the art treatment. Sometimes they may be the only way to get some newer treatments. They are also the best way for doctors to learn better methods to treat CD. Still, they are not right for everyone.

If you would like to learn more about clinical trials that might be right for you, start by asking your doctor if your clinic or hospital conducts clinical trials. You can also get a list of current clinical trials by visiting the US National Institutes of Health (NIH) clinical trials website at

You must meet certain requirements to take part in any clinical trial. If you do qualify for a clinical trial, it is up to you whether or not to enter (enroll in) it.

You can get a lot more information on clinical trials in our document Clinical Trials: What You Need to Know.

Last Medical Review: 07/07/2014
Last Revised: 07/07/2014