- How is Castleman disease treated?
- Surgery for Castleman disease
- Radiation therapy for Castleman disease
- Corticosteroids for Castleman disease
- Chemotherapy for Castleman disease
- Immunotherapy for Castleman disease
- Anti-viral drugs for Castleman disease
- Clinical trials for Castleman disease
- Complementary and alternative therapies for Castleman disease
- Treatment of localized (unicentric) Castleman disease
- Treatment of multicentric Castleman disease
How is Castleman disease treated?
General treatment information
Once you have been diagnosed with Castleman disease (CD), your health care team will discuss treatment options with you. Several different types of treatment can be used for CD:
Your treatment options will depend on the whether the CD is localized (unicentric) or multicentric, as well as other factors. Because CD is rare, it has been hard to do studies to learn the best ways to treat it. Of course, no two patients are exactly alike, so treatment is tailored to each person’s situation.
Based on your treatment options, you can have different types of doctors on your treatment team. These doctors might include:
- A surgeon
- A hematologist: a doctor who treats disorders of the blood and lymph system, including CD
- A medical oncologist: a doctor who treats cancer and similar diseases with medicines
- A radiation oncologist: a doctor who treats cancer and similar diseases with radiation therapy
Many other specialists might be part of your treatment team as well, including physician assistants, nurse practitioners, nurses, nutrition specialists, social workers, and other health professionals. See Health Professionals Associated With Cancer Care for more on this.
It’s important to discuss all of your treatment options, including the goals of treatment and possible side effects, with your doctors to help make the decision that best fits your needs. In choosing a treatment plan, consider your health and the type of CD. Be sure that you understand all the risks and side effects of the various treatments before making a decision. Ask your health care team questions. You can find some good questions to ask in the section “What should you ask your doctor about Castleman disease?”
CD is a rare disease, so not many doctors have much experience treating it. If time allows, it’s often a good idea to seek a second opinion. Getting a second opinion can give you more information and help you feel confident about the treatment plan that you choose. Your doctor should be willing to help you find another doctor who can give you a second opinion.
The next few sections describe the types of treatment used for Castleman disease. This is followed by a discussion of the typical treatment options based on whether the CD is localized (unicentric) or multicentric, as well as other factors when these are important.
Last Medical Review: 07/07/2014
Last Revised: 07/07/2014