If treatment for Hodgkin disease is no longer working
If Hodgkin disease keeps growing or comes back after one kind of treatment, it is often possible to try other treatment plans that might still cure it or at least keep it under control enough to help you live longer and feel better.
But when a person has had many different treatments and the cancer has not been cured, over time even newer treatments might no longer be helpful. At this time you may have to weigh the possible benefits of a new treatment against the downsides, like treatment side effects and clinic visits. Everyone has their own way of looking at this.
This is likely to be the hardest time in your battle with cancer – when you have tried everything within reason and the lymphoma is no longer getting better. Even newer treatments might not help. You will need to talk to your doctor about how likely it is that further treatment will improve your health or change your outlook for survival.
No matter what you decide to do, it is important for you to feel as good as you can. Make sure you are asking for and getting treatment for pain, nausea, or any other problems you may have. This type of treatment is called palliative care. It helps relieve symptoms but is not meant to cure the cancer.
At some point you may want to think about hospice care. This is special care that focuses on quality rather than length of life. Most of the time, it is given at home. Your cancer may be causing symptoms or problems that need to be treated. Hospice focuses on your comfort. You should know that having hospice care doesn’t mean you can’t have treatment for the problems caused by your cancer or other health issues. It just means that the purpose of your care is to help you live life as fully as possible and to feel as well as you can. You can learn more about this in our document Hospice Care.
Staying hopeful is important, too. Your hope for a cure may not be as bright, but there is still hope for good times with family and friends — times that are filled with joy and meaning. Pausing at this time in your cancer treatment gives you a chance to focus on the most important things in your life. Now is the time to do some things you’ve always wanted to do and to stop doing the things you no longer want to do. Though the cancer may be beyond your control, there are still choices you can make.
You can learn more about the changes that occur when treatment stops working, and about planning ahead for yourself and your family, in our documents Advance Directives and Nearing the End of Life. You can read them online or call us at 1-800-227-2345 to have free copies mailed to you.
Last Medical Review: 08/19/2014
Last Revised: 08/27/2014