Additional resources for laryngeal and hypopharyngeal cancers
We have a lot more information that you might find helpful. Explore www.cancer.org or call our National Cancer Information Center toll-free number, 1-800-227-2345. We’re here to help you any time, day or night.
National organizations and websites*
Along with the American Cancer Society, other sources of information and support include:
International Association of Laryngectomees (IAL)
Toll-free number: 1-866-425-3678 (1-866-IAL-FORU)
Programs and services include: Skills education for laryngectomees; a directory of vendors for laryngectomy supplies, including communication devices, stoma covers, “neck breather’ bracelets and more; laryngectomee clubs in over 11 countries (internet clubs also available); a registry of alaryngeal (post-laryngectomy) speech instructors; the Voice Rehabilitation Institute which trains laryngectomees and therapists; as well as newsletters and educational materials
National Cancer Institute (NCI)
Toll-free number: 1-800-422-6237 (1-800-4-CANCER)
Their “Cancer Information Service” offers a wide variety of free, accurate, up-to-date information about cancer to patients, their families, and the general public; also can help people find clinical trials in their area
National Coalition for Cancer Survivorship (NCCS)
Toll-free number: 1-888-650-9127
Call 1-877-NCCS-YES (622-7937) for publications on many topics and Cancer Survivor Toolbox® orders. The Cancer Survival Toolbox is a free program that teaches skills that can help people with cancer meet the challenges of their illness.
Support for People with Oral and Head and Neck Cancer, Inc. (SPOHNC)
Toll-free number: 1-800-377-0928
Offers free telephone support for survivors and their families, as well as resources and referrals on all aspects of oral and head and neck cancer; also has a “survivor-to-survivor network;” and resource and product information, including a free resource guide called “We Have Walked in Your Shoes”
WebWhispers Nu-Voice Club
A free internet-based laryngectomee resource for those who have questions about larynx cancer treatments, surgery, recovery, and what life is like after a laryngectomy. Offers an information library -- covering topics as varied as larynx cancer treatment, talking again, stoma care, activities of daily living, and caregiving ; a complete listing of laryngectomee suppliers; the WebWhispers Forum – an online community; a loan closet that provides temporary use of an electrolarynx (EL) for member trials or for those whose units are being repaired; and more
No matter who you are, we can help. Contact us anytime, day or night, for information and support. Call us at 1-800-227-2345 or visit www.cancer.org.
Last Medical Review: 04/08/2014
Last Revised: 02/17/2016