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We have a lot more information that you might find helpful. Explore www.cancer.org or call our National Cancer Information Center toll-free number, 1-800-227-2345. We’re here to help you any time, day or night.

National organizations and websites*

Along with the American Cancer Society, other sources of information and support include:

International Association of Laryngectomees (IAL)
Toll-free number: 1-866-425-3678 (1-866-IAL-FORU)
Website: www.theial.com

    Programs and services include: Skills education for laryngectomees; a directory of vendors for laryngectomy supplies, including communication devices, stoma covers, “neck breather’ bracelets and more; laryngectomee clubs in over 11 countries (internet clubs also available); a registry of alaryngeal (post-laryngectomy) speech instructors; the Voice Rehabilitation Institute which trains laryngectomees and therapists; as well as newsletters and educational materials

National Cancer Institute (NCI)
Toll-free number: 1-800-422-6237 (1-800-4-CANCER)
TYY: 1-800-332-8615
Website: www.cancer.gov

    Their “Cancer Information Service” offers a wide variety of free, accurate, up-to-date information about cancer to patients, their families, and the general public; also can help people find clinical trials in their area

National Coalition for Cancer Survivorship (NCCS)
Toll-free number: 1-888-650-9127
Website: www.canceradvocacy.org

    Call 1-877-NCCS-YES (622-7937) for publications on many topics and Cancer Survivor Toolbox® orders. The Cancer Survival Toolbox is a free program that teaches skills that can help people with cancer meet the challenges of their illness.

Support for People with Oral and Head and Neck Cancer, Inc. (SPOHNC)
Toll-free number: 1-800-377-0928
Website: www.spohnc.org

    Offers free telephone support for survivors and their families, as well as resources and referrals on all aspects of oral and head and neck cancer; also has a “survivor-to-survivor network;” and resource and product information, including a free resource guide called “We Have Walked in Your Shoes”

WebWhispers Nu-Voice Club
Website: www.webwhispers.org

    A free internet-based laryngectomee resource for those who have questions about larynx cancer treatments, surgery, recovery, and what life is like after a laryngectomy. Offers an information library -- covering topics as varied as larynx cancer treatment, talking again, stoma care, activities of daily living, and caregiving ; a complete listing of laryngectomee suppliers; the WebWhispers Forum – an online community; a loan closet that provides temporary use of an electrolarynx (EL) for member trials or for those whose units are being repaired; and more

*Inclusion on this list does not imply endorsement by the American Cancer Society.

No matter who you are, we can help. Contact us anytime, day or night, for information and support. Call us at 1-800-227-2345 or visit www.cancer.org.

Last Medical Review: 04/08/2014
Last Revised: 02/17/2016