For some people with laryngeal or hypopharyngeal cancer, treatment may remove or destroy the cancer. Being done with treatment can be both stressful and exciting. You might be relieved to finish treatment but find it hard not to worry about cancer growing or coming back. (When cancer comes back after treatment, it is called recurrence.) This is a very common concern in people who have had cancer.
It may take a while before your recovery begins to feel real and your fears are somewhat relieved. You can learn more about what to look for and how to learn to live with the chance of cancer coming back in Living With Uncertainty: The Fear of Cancer Recurrence.
For other people, the cancer may never go away completely. These people may get regular treatments with chemo, radiation, or other treatments to help keep the cancer in check for as long as possible. Learning to live with cancer as more of a chronic disease can be hard and very stressful. It has its own type of uncertainty. See When Cancer Doesn’t Go Away for more about this.
If you have finished treatment, your doctors will still want to watch you closely. It is very important to go to all follow-up visits. When these cancers come back, it is most often in the first couple of years, so you will likely have head and neck exams often, including a scope exam, about every other month during the first year or so after treatment. Follow-up may then be more spread out as time goes on and there is no sign of cancer. Chest x-rays and other imaging tests may be used to watch for a return of the cancer or for a new tumor.
If you were treated with radiation to the neck, you may need blood tests to check your thyroid function. Your doctor may also suggest dental exams or tests to check your speech and swallowing, especially if you are having any problems after treatment.
Almost any cancer treatment can have side effects. Some may last for a few weeks or months, but others can be permanent. Please tell your cancer care team about any symptoms or side effects that bother you so they can help you manage them. Use this time to ask your health care team questions and discuss any concerns you might have.
It is also important to keep health insurance. While you hope your cancer won’t come back, it could happen. If it does, you don’t want to have to worry about paying for treatment. Should your cancer come back, When Your Cancer Comes Back: Cancer Recurrence can help you cope with this phase of your treatment.
Restoring speech after total laryngectomy
If you have had a total laryngectomy, you will not be able to talk like you did before. But there are many ways you can talk again. Learning to speak again will take time and effort, and your voice will not sound the same. You will need to see a person trained to help people who have lost their vocal cords (a speech therapist).
Stoma care after total laryngectomy
Having a stoma (tracheostomy) means that the air you breathe in and out will not pass through your nose or mouth. The air reaching your lungs will be dryer and cooler. This may cause problems with the lining of the breathing tubes and thick or crusty mucus may form.
For this reason, you should learn how to take care of your stoma. The cancer care team will give you information about stoma care, such as protecting and cleaning it. And there are support groups for people who have had this surgery. They can give you information about caring for the stoma and how to use products to help protect and clean it.
Help for trouble swallowing and nutrition problems
Cancers of the larynx or hypopharynx and their treatments can sometimes cause problems such as trouble swallowing, dry mouth, or even loss of teeth. This can make it hard to eat, which can lead to weight loss and weakness due to poor nutrition.
Some people may need to adjust what they eat during and after treatment or they might need nutritional supplements. Some may even need a feeding tube placed in the stomach for a time after treatment. A team of doctors and nutritionists can work with you to help sort out what works for you. This can help you maintain your weight and nutritional intake.
Seeing a new doctor
At some point after your cancer is found and treated, you may find yourself in the office of a new doctor. It is important that you be able to give your new doctor the exact details of your diagnosis and treatment. Gathering these details soon after treatment may be easier than trying to get them at some point in the future. Make sure you have this information handy and always keep copies for yourself:
- A copy of your pathology report from any biopsy or surgery
- Copies of imaging tests (CT or MRI scans, etc.), which can usually be stored on a CD, DVD, etc.
- If you had surgery, a copy of your operative report
- If you stayed in the hospital, a copy of the discharge summary that the doctor wrote when you were sent home from the hospital
- If you had radiation treatment, a copy of the treatment summary
- If you had chemotherapy or targeted therapies, a list of your drugs, drug doses, and when you took them
Last Revised: 02/17/2016