Moving on after treatment for chronic myeloid leukemia
For a few people with chronic myeloid leukemia (CML), treatment may remove or destroy the cancer. Completing treatment can be both stressful and exciting. You may be relieved to finish treatment, but find it hard not to worry about cancer coming back. (When cancer comes back after treatment, it is called recurrence.) This is a very common concern in people who have had cancer.
It may take a while before your fears lessen. But it may help to know that many cancer survivors have learned to live with this uncertainty and are leading full lives. Our document Living With Uncertainty: The Fear of Cancer Recurrence gives more detailed information on this.
For most patients with CML, treatment doesn't end and they stay on stay on some type of treatment indefinitely. Often, the treatment keeps the CML in check, but it doesn't seem to cure this disease. Being on long-term treatment can be stressful. It has its own type of uncertainty. Our document When Cancer Doesn't Go Away, talks more about this.
Even if there are no signs of the disease, your doctors will still want to watch you closely. It is very important to go to all of your follow-up doctor visits. During these, your doctors will ask questions about any problems you may have and may do exams and lab tests to look for signs of CML and treatment side effects. Almost any cancer treatment can have side effects. Some may last for a few weeks to months, but others can last the rest of your life. This is the time for you to talk to your cancer care team about any changes or problems you notice and any questions or concerns you have.
It is important to keep health insurance. Tests and doctor visits cost a lot, and even though no one wants to think of their cancer coming back, this could happen.
Should your cancer come back, our document When Your Cancer Comes Back: Cancer Recurrence can give you information on how to manage and cope with this phase of your treatment.
Seeing a new doctor
At some point after your cancer diagnosis and treatment, you may find yourself seeing a new doctor who does not know anything about your medical history. It is important that you be able to give your new doctor the details of your diagnosis and treatment. Gathering these details soon after treatment may be easier than trying to get them at some point in the future. Make sure you have this information handy:
- A copy of your pathology report from any biopsy or surgery
- If you had surgery, a copy of your operative report
- If you were in the hospital, a copy of the discharge summary that the doctor wrote when you were sent home from the hospital
- If you had radiation treatment, a summary of the type and dose of radiation and when and where it was given
- If you had drug treatment (such as chemotherapy, interferon, or targeted therapies), a list of your drugs, drug doses, and when you took them
Last Medical Review: 08/13/2013
Last Revised: 02/10/2014