Childhood Leukemia

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After Treatment TOPICS

Keeping good medical records

As much as you might want to put the experience behind you once treatment is done, it is also very important to keep good records of your child’s medical care during this time. Eventually, your child will grow up, be on his or her own, and have new doctors. It is important that your child be able to give the new doctors the details of the cancer diagnosis and treatment. Gathering the details soon after treatment may be easier than trying to get them at some point in the future. There are certain pieces of information that your child’s doctors should have, even into adulthood. These include:

  • A copy of the pathology reports from any biopsies or surgeries.
  • If your child had surgery, a copy of the operative report.
  • If your child stayed in the hospital, copies of the discharge summaries that doctors prepare when patients are sent home.
  • A list of the final doses of each chemotherapy drug or other drug your child received. (Certain drugs have specific long-term side effects.)
  • If radiation therapy was given, a summary of the type and dose of radiation and when and where it was given.

It is also very important to keep your child’s health insurance coverage. Tests and doctor visits cost a lot, and even though no one wants to think of the leukemia coming back, this could happen.


Last Medical Review: 10/24/2013
Last Revised: 02/03/2014