Additional resources for childhood leukemia
More information from your American Cancer Society
Here is more information you might find helpful. You also can order free copies of our documents from our toll-free number, 1-800-227-2345, or read them on our website, www.cancer.org.
Children with cancer
Children Diagnosed With Cancer: Dealing with Diagnosis (also in Spanish)
Pediatric Cancer Centers (also in Spanish)
Children Diagnosed With Cancer: Understanding the Health Care System (also in Spanish)
Talking With Your Doctor (also in Spanish)
Coping with cancer
After Diagnosis: A Guide for Patients and Families (also in Spanish)
Family and Medical Leave Act (FMLA) (also in Spanish)
Nutrition for Children With Cancer (also in Spanish)
What Happened to You, Happened to Me (children’s booklet)
When Your Brother or Sister Has Cancer (children’s booklet)
When Your Child’s Treatment Ends: A Guide for Families (booklet)
Cancer treatment information
Understanding Chemotherapy: A Guide for Patients and Families (also in Spanish)
Understanding Radiation Therapy: A Guide for Patients and Families (also in Spanish)
Clinical Trials: What You Need to Know (also in Spanish)
Cancer treatment side effects
Guide to Controlling Cancer Pain (also in Spanish)
Get Relief From Cancer Pain
Your American Cancer Society also has books that you might find helpful. Call us at 1-800-227-2345 or visit our bookstore online at cancer.org/bookstore to find out about costs or to place an order.
For family and friends of the child
American Cancer Society Complete Guide to Family Caregiving, Second Edition
Because... Someone I Love Has Cancer (kids’ activity book)
For the child with cancer
Imagine What’s Possible: Use the Power of Your Mind to Take Control of Your Life During Cancer (grades 4 through 6)
Let My Colors Out (picture book for children ages 5 to 10)
The Long and the Short of It: A Tale About Hair (ages 7 and up)
What’s Up with Richard? Medikidz Explain Leukemia (graphic novel for pre-teens and teens)
National organizations and websites*
Along with the American Cancer Society, other sources of information and support include:
Websites for parents and adults
American Childhood Cancer Organization (formerly Candlelighters)
Toll-free number: 1-855-858-2226
Offers information for children and teens with cancer, their siblings, and adults dealing with children with cancer. Also offers books and a special kit for children newly diagnosed with cancer, as well as some local support groups.
Childhood Brain Tumor Foundation
Toll-free number: 1-877-217-4166
Though offered by the Childhood Brain Tumor Foundation, services are provided for children with ANY type cancer. Provides information and research options to families so that they may better exercise their rights in making decisions in the areas of medical treatment, schooling, rehabilitation, employment, and insurance reimbursement/coverage.
Children’s Oncology Group (COG)
Provides key information from the world’s largest organization devoted to childhood cancer research to help support children and their families from the time of diagnosis, through treatment, and beyond. Also has a searchable database to find the COG center closest to you.
CureSearch for Children’s Cancer
Toll-free number: 1-800-458-6223
Provides up-to-date information about childhood cancer from pediatric cancer experts. Has sections on the website for patients, families, and friends to help guide them on how to support the child with cancer.
Leukemia & Lymphoma Society
Toll-free number: 1-800-955-4572
Has an Information Resource Center, staffed by health care professionals, available via the toll free number; free publications on all forms of leukemia, as well as other related topics (some materials are also available in Spanish); family support groups for patients, family, and friends are available in most geographical areas; free education teleconferences and webcasts (schedule is available on the website; also has a program to assist patients with significant financial need to cover some of the costs associated with transportation, drug co-pays, and insurance premiums.
National Cancer Institute
Toll-free number: 1-800-4-CANCER (1-800-422-6237)
Provides accurate, up-to-date information about cancer for patients and their families, including clinical trials information. Offers a special booklet for teen siblings of a child with cancer at: www.cancer.gov/cancertopics/when-your-sibling-has-cancer.
National Children’s Cancer Society, Inc.
Toll-free number: 1-800-5-FAMILY (1-800-532-6459)
Services include an online support network for parents of children with cancer, educational materials, and financial assistance for treatment-related expenses.
National Dissemination Center for Children with Disabilities (NICHCY)
Toll-free number: 1-800-695-0285 (also for TTY)
Provides information about disabilities and disability-related issues for families, educators, and other professionals.
Websites for teens and children
Starlight Children’s Foundation
Toll-free number: 1-800-315-2580
Website has animated stories and interactive programs to teach kids about chemo and procedures that are done in the hospital; also has videos specifically for teens and provides a safe, monitored online support group for teens with cancer.
Group Loop (a subsite of the Cancer Support Community just for teens)
Toll-free number: 1-888-793-9355
An online place for teens with cancer or teens who know someone with cancer to connect with other teens away from the pressures of classes, responsibilities, and treatment schedules. Has online support groups, chat rooms, information, and more.
Teens Living with Cancer
An online-only resource dedicated to teens coping with a cancer diagnosis and treatment. It focuses on teen issues and provides resources to support teens, their families, and friends.
Toll-free number: 1-888-417-4704
Supports, honors, and recognizes 4- to 18-year-old brothers and sisters of children diagnosed with cancer so they may face the future with strength, courage, and hope.
No matter who you are, we can help. Contact us anytime, day or night, for cancer-related information and support. Call us at 1-800-227-2345 or visit www.cancer.org.
Last Medical Review: 10/24/2013
Last Revised: 02/03/2014