Childhood Leukemia Overview

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After Treatment TOPICS

Keeping good medical records

After treatment is finished, you and your child may want to put the experience behind you as much as you can. Someday your child will be on his or her own and have new doctors. It is important that you or your child be able to give the new doctors the details of the cancer diagnosis and treatment. Gathering the details soon after treatment may be easier than trying to get them at some point in the future. There are certain pieces of information you should keep copies of and see that your child’s doctors have, even into adulthood. These include:

  • A copy of the pathology reports from any biopsies or surgeries.
  • If your child had surgery, a copy of the operative report.
  • If your child stayed in the hospital, copies of the discharge summaries that doctors prepare when patients are sent home.
  • A list of the final doses of each drug your child had. (Certain chemo drugs have specific long-term side effects.)
  • If radiation was given, a final summary of the dose and field.

It is also very important to keep your child’s health insurance coverage. Tests and doctor visits cost a lot, and even though no one wants to think of the leukemia coming back, this could happen.

Last Medical Review: 11/11/2013
Last Revised: 02/03/2014