EXPERT VOICES

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Survivorship (20 posts)  RSS

Chemo Brain: It is Real

April 09, 2012

By Terri Ades, DNP, FNP-BC, AOCN

 

Recently a colleague at work who had just returned from a getting a haircut mentioned to me that his hairdresser, who has lung cancer, was upset because her husband was very worried about her. The hairdresser explained that she had started having some memory problems - couldn't remember what she did yesterday or couldn't remember people's names.  And she had started to tell her husband something and stopped in the middle of her story - not remembering what to say next.  She too acknowledged being a little concerned and was seeing her doctor in 3 days, but she didn't know how to help her husband until then.  I asked if she was receiving chemotherapy and was told yes, so I explained that she might have "chemo brain."  


We've known for some time that radiation therapy to the brain can cause problems with thinking and memory. Now, we are learning that chemotherapy is linked to some of the same kinds of problems. Research has shown that some chemotherapy agents can cause certain kinds of changes in the brain. Though the brain usually recovers over time, the sometimes vague yet distressing mental changes cancer patients notice are real, not imagined. These changes can make people unable to go back to their school, work, or social activities, or make it so that it takes a lot of mental effort to do so.  These changes affect everyday life for many people receiving cancer treatment. More...

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Survivorship | Terri Ades

The key to good care for cancer survivors

February 23, 2012

By Lewis Foxhall, MD

 

Every cancer patient wants to successfully complete active treatment .  Thanks to improved treatments and use of cancer screening programs (which can find cancer early, when it's most treatable), this goal is being reached more frequently than ever. 

 

But to get the most out of treatment there is more you can do.  A proactive approach to care for cancer survivors has developed over the last few years. This includes traditional follow up looking for any signs the original cancer has come back.  It also includes active management of any lingering side effects of treatment, testing for new cancers, and addressing psychological and social problems that may develop or persist after treatment.  This approach is intended to give you the greatest benefit from your treatment so you can live longer, and better. More...

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Survivorship

Weight Loss during Chemo

January 24, 2012

By Michele Szafranski, MS, RD, CSO, LDN

 

"Well, I could stand to lose some weight." As a cancer dietitian, I have heard this more times than I can count in the past 10 years. But most people are surprised when I explain to them that losing weight during their treatment may not be the best time. While getting to a healthy weight over the long run can be a healthy thing to do,  it can actually be harmful before and during cancer treatment.


For some people with cancer, keeping weight stable can feel like an uphill battle since there are many factors that can contribute to weight loss even before patients are diagnosed. For instance, the cancer itself may produce chemicals called "cytokines" that can give you less of an appetite or cause nausea. Or the location of a tumor may place pressure on the digestive tract, making you fill up on food easily or have a hard time swallowing. After receiving a diagnosis, anxiety about the diagnosis and upcoming treatment can take away appetite. Then once treatment begins, side effects such as nausea, diarrhea, taste changes, and sore throat can change what and how much people are eating. More...

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Survivorship

To Treat or Not to Treat Prostate Cancer: That Is the Question

January 18, 2012

By Durado Brooks, MD, MPH

 

Imagine being told by your doctor, "You have cancer."  Then imagine that their next words are "... but we probably don't need to do anything about it."  Many people would immediately start looking for another doctor. But hold on just a moment.


Last month the National Institutes of Health (NIH) brought together experts from around the world for a summit to examine the state of our scientific knowledge on "active surveillance" as a management strategy for prostate cancer. For those of you who are unfamiliar with the term, active surveillance essentially means monitoring the cancer closely and delaying active treatment (surgery or radiation, for instance) until there are signs it is needed; the delay may be months, years, or forever. This summit pointed out that while there is still much we need to learn about this once-controversial approach, there is a wealth of data supporting the potential value of active surveillance for a large number of the 240,000 men in the United States who are diagnosed with prostate cancer each year.  More...

Why Everyone Deserves Palliative Care

November 29, 2011

By Terri Ades, DNP, FNP-BC, AOCN


As an advanced practice oncology nurse, I've been asked many interesting questions about cancer at cocktail parties. While I've never been asked about palliative care, my sense is that more people should be asking about it.  Opinion surveys indicate that the public does not understand palliative care.  So what?  Well, if the public doesn't understand it, then when they or a family member need it, they may be missing out on care they should be receiving.   


Palliative care is care given by specialized health professionals to improve the quality of life of individuals and families who face a serious illness. Palliative care addresses the physical, emotional, spiritual, and social needs of a person from the time of a diagnosis to the end of life.  It is the care that occurs to relieve symptoms (like pain, nausea, and fatigue) when someone is undergoing therapy to cure their  cancer, or to address their emotional suffering when they are told their cancer has progressed, or the social suffering they experience with limited income and health insurance, or their spiritual suffering when they have lost hope.   More...

Filed Under:

Survivorship | Terri Ades

Crisis, Opportunity, Communication

November 08, 2011

By Greta Greer, MSW, LCSW


In my last blog, I provided general tips for communicating with someone diagnosed with cancer. In this blog, I talk about the added importance of good, open communication when you are caring for a loved one with cancer.


When it comes to being a cancer caregiver, I've found that caregivers often have the same questions and concerns as the person with cancer. Is he [am I] going to die? What if I can't handle this?  Where's the money coming from for treatment? Is the cancer his [my] fault? I told her to go [I know I should have gone]...to the doctor... stop smoking... lose weight...get a colonoscopy, mammogram, Pap smear...use sunscreen!  I'm so angry...scared...overwhelmed. Is cancer contagious?  However, both those with cancer and those who care about them may not share these concerns with one another. Why is that? More...

What to Say When Someone Has Cancer

September 20, 2011

By Greta Greer, MSW, LCSW


Nearly 12 million people living in the United States today were diagnosed with cancer at some point in their lives; some are undergoing active treatment and others are living cancer free. Most of us know at least one person with cancer, but how confident are you in your ability to communicate well with someone who has recently been diagnosed or is in treatment for cancer?


Feeling insecure about how to communicate well with a family member, friend, neighbor, or co-worker who is facing cancer is quite common. If I only had a nickel for every time I've heard "I don't know what to say!"  And it's especially confusing if you heard about the diagnosis "through the grapevine."


Communication is challenging even in the best of circumstances. So when cancer enters the picture, lots of deep emotions and concerns take it to a new level. It raises the stakes in terms of how it can affect your relationship. Saying or doing the "wrong" thing takes on added significance to your partner, family member, or friend when they have cancer. What you don't say or do is equally important. More...

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Greta Greer | Survivorship

Creating One Magic Law to Make Patients Our True North

August 23, 2011

By Rebecca Kirch


"We don't beat the Reaper by living longer.  We beat the Reaper by living well."  Professor Randy Pausch, who died from pancreatic cancer at age 48, made this declaration in a commencement address shortly after enjoying a remarkable and viral reception to his "Last Lecture" at Carnegie Mellon in 2007.  His sage words still resonate today, and, in my view from my role with the American Cancer Society, capture so eloquently the heart and soul of what most patients, survivors, and families facing cancer really want. Sadly, that's not the case for many patients and survivors who endure untreated pain, breathlessness, fatigue, nausea, depression, and stress as a result of cancer and its treatment.  Which got me thinking...what would be that one magic law to boost quality of life and prevent suffering so that our health system delivers truly patient-centered and family-centered care? More...

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Survivorship

Surviving and Thriving!

June 09, 2011

By Kevin D. Stein, PhD


National Cancer Survivor's Day was this past Sunday (June 5).  What better time to share some of the many tips cancer survivors say they've used to improve their quality of life and empower themselves during and after their fight against cancer.


There are nearly 12 million cancer survivors in the United States. "Survivor" can have different meanings to people with cancer. Some people use the word to refer to anyone who has been diagnosed with cancer. For example, someone living with cancer may be considered a survivor. Some people use the term when referring to someone who has completed cancer treatment. And still others call a person a survivor if he or she has lived several years past a cancer diagnosis. The American Cancer Society believes that each individual has the right to define his or her own experience with cancer and considers a cancer survivor to be anyone who defines himself or herself this way, from the time of diagnosis throughout the balance of his or her life.  


But no matter where someone is in their cancer experience, the following tips may empower survivors and improve their quality of life. More...

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Survivorship

Can my cancer treatment give me another cancer later?

May 17, 2011

By Elizabeth Ward, PhD

Cancer patients may sometimes worry that treatment for their cancer might lead to another cancer down the road. Radiation therapy (radiotherapy) is of particular concern because radiation is known to cause cancer.


A recent study published in the Lancet Oncology journal found that cancer patients who were treated with radiotherapy were more likely to develop second cancers than patients with similar cancers who didn't receive radiotherapy.  Experts have known for many years that radiation therapy can increase cancer risk; however, this is the first study to compare the risk of second cancers among radiation-treated patients to a large group of similar patients who did not receive such treatment.  The study estimated that about 8% of second cancers among patients who received radiation were due to the radiation, which translates to five excess cancers per 1,000 treated patients.  This means that for every 1,000 patients who were treated with radiotherapy, 5 of them would have a second cancer caused by that radiation treatment.

More...

Filed Under:

Breaking News | Survivorship

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