Non-Hodgkin Lymphoma in Children

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Other Resources and References TOPICS

Additional resources for non-Hodgkin lymphoma in children

More information from your American Cancer Society

Here is more information you might find helpful. You also can order free copies of our documents from our toll-free number, 1-800-227-2345, or read them on our website, www.cancer.org.

Children with cancer

Children Diagnosed With Cancer: Dealing with Diagnosis (also in Spanish)

Pediatric Cancer Centers (also in Spanish)

Children Diagnosed With Cancer: Understanding the Health Care System (also in Spanish)

Children Diagnosed With Cancer: Financial and Insurance Issues

Children Diagnosed With Cancer: Returning to School

Children Diagnosed With Cancer: Late Effects of Cancer Treatment

Health Professionals Associated With Cancer Care

Talking With Your Doctor (also in Spanish)

Coping with cancer

After Diagnosis: A Guide for Patients and Families (also in Spanish)

Family and Medical Leave Act (FMLA) (also in Spanish)

Nutrition for Children With Cancer (also in Spanish)

What Happened to You, Happened to Me (children’s booklet)

When Your Brother or Sister Has Cancer (children’s booklet)

When Your Child’s Treatment Ends: A Guide for Families (booklet)

Cancer treatment information

A Guide to Chemotherapy (also in Spanish)

Understanding Radiation Therapy: A Guide for Patients and Families (also in Spanish)

Clinical Trials: What You Need to Know (also in Spanish)

Stem Cell Transplant (Peripheral Blood, Bone Marrow, and Cord Blood Transplants) (also in Spanish)

Cancer treatment side effects

Caring for the Patient With Cancer at Home: A Guide for Patients and Families (also in Spanish)

Nausea and Vomiting

Guide to Controlling Cancer Pain (also in Spanish)

Anemia in People With Cancer

Fatigue in People With Cancer

Fertility and Women With Cancer

Fertility and Men With Cancer

Second Cancers Caused by Cancer Treatment

Books

Your American Cancer Society also has books that you might find helpful. Call us at 1-800-227-2345 or visit our bookstore online at cancer.org/bookstore to find out about costs or to place an order.

For family and friends of the child

American Cancer Society Complete Guide to Family Caregiving, Second Edition

Because... Someone I Love Has Cancer (kids’ activity book)

For the child with cancer

Imagine What’s Possible: Use the Power of Your Mind to Take Control of Your Life During Cancer (grades 4 through 6)

Let My Colors Out (picture book for children ages 5 to 10)

The Long and the Short of It: A Tale About Hair (ages 7 and up)

National organizations and websites*

Along with the American Cancer Society, other sources of information and support include:

American Childhood Cancer Organization (formerly Candlelighters)
Toll-free number: 1-855-858-2226
Web site: www.acco.org

    Offers information for children and teens with cancer, their siblings, and adults dealing with children with cancer. Also offers books and a special kit for children newly diagnosed with cancer, as well as some local support groups.

Children’s Oncology Group (COG)
Website: www.childrensoncologygroup.org

    Provides key information from the world’s largest organization devoted to childhood cancer research to help support children and their families from the time of diagnosis, through treatment, and beyond. Also has a searchable database to find the COG center closest to you.

CureSearch for Children’s Cancer
Toll-free number: 1-800-458-6223
Website: www.curesearch.org

    Provides up-to-date information about childhood cancer from pediatric cancer experts. Has sections on the website for patients, families, and friends to help guide them on how to support the child with cancer.

Leukemia & Lymphoma Society
Toll-free number: 1-800-955-4572
Web site: www.lls.org

    Has an Information Resource Center, staffed by health care professionals, available via the toll free number; free publications on lymphoma, as well as other related topics (some materials are also available in Spanish); family support groups for patients, family, and friends are available in most geographical areas; free education teleconferences and webcasts (schedule is available on the website; also has a program to assist patients with significant financial need to cover some of the costs associated with transportation, drug co-pays, and insurance premiums.

National Cancer Institute
Toll-free number: 1-800-4-CANCER (1-800-422-6237)
Web site: www.cancer.gov

    Provides accurate, up-to-date information about cancer for patients and their families, including clinical trials information. Offers a special booklet for teen siblings of a child with cancer at: www.cancer.gov/cancertopics/when-your-sibling-has-cancer.

National Children’s Cancer Society, Inc.
Toll-free number: 1-800-5-FAMILY (1-800-532-6459).
Web site: www.children-cancer.org

    Services include an online support network for parents of children with cancer, educational materials, and financial assistance for treatment-related expenses.

National Dissemination Center for Children with Disabilities (NICHCY)
Toll-free number: 1-800-695-0285 (also for TTY)
Web site: www.nichcy.org

    Provides information about disabilities and disability-related issues for families, educators, and other professionals.

Websites for teens and children

Starlight Children’s Foundation
Toll-free number: 1-800-315-2580
Website: www.starlight.org

    Website has animated stories and interactive programs to teach kids about chemo and procedures that are done in the hospital; also has videos specifically for teens and provides a safe, monitored online support group for teens with cancer.

Group Loop (a subsite of the Cancer Support Community just for teens)
Toll-free number: 1-888-793-9355
Website: www.grouploop.org

    An online place for teens with cancer or teens who know someone with cancer to connect with other teens away from the pressures of classes, responsibilities, and treatment schedules. Has online support groups, chat rooms, information, and more.

Teens Living with Cancer
Website: www.teenslivingwithcancer.org/

    An online-only resource dedicated to teens coping with a cancer diagnosis and treatment. It focuses on teen issues and provides resources to support teens, their families, and friends.

SuperSibs! powered by Alex’s Lemonade Stand
Toll-free number: 1-866-333-1213
Website: www.supersibs.org

    Supports, honors, and recognizes brothers and sisters of children diagnosed with cancer so they may face the future with strength, courage, and hope. Alex’s Lemonade Stand is restarting SuperSibs in 2014 so there may be some delays with resuming support services.

*Inclusion on this list does not imply endorsement by the American Cancer Society.

No matter who you are, we can help. Contact us anytime, day or night, for information and support. Call us at 1-800-227-2345 or visit www.cancer.org.


Last Medical Review: 03/07/2014
Last Revised: 03/10/2014