Additional resources for non-Hodgkin lymphoma in children
More information from your American Cancer Society
Here is more information you might find helpful. You also can order free copies of our documents from our toll-free number, 1-800-227-2345, or read them on our Web site, www.cancer.org.
After Diagnosis: A Guide for Patients and Families (also available in Spanish)
Children Diagnosed With Cancer: Dealing with Diagnosis (also available in Spanish)
Children Diagnosed With Cancer: Understanding the Health Care System (also available in Spanish)
Understanding Chemotherapy: A Guide for Patients and Families (also available in Spanish)
Understanding Radiation Therapy: A Guide for Patients and Families (also available in Spanish)
What Happened to You, Happened to Me (children’s booklet)
When Your Brother or Sister Has Cancer (children’s booklet)
When Your Child's Treatment Ends: A Guide for Families
The following books are available from the American Cancer Society. Call us at 1-800-227-2345 to ask about costs or to place your order.
American Cancer Society Complete Guide to Family Caregiving, Second Edition
Because... Someone I Love Has Cancer (kids' activity book)
Caregiving: A Step-By-Step Resource for Caring for the Person With Cancer at Home
Jacob Has Cancer: His Friends Want to Help (coloring book for a child with a friend who has cancer)
Let My Colors Out (picture book for young children)
National organizations and Web sites*
In addition to the American Cancer Society, other sources of patient information and support include:
American Childhood Cancer Organization (formerly Candlelighters)
Toll-free number: 1-800-366-2223
Web site: www.acco.org
CureSearch (National Childhood Cancer Foundation and Children’s Oncology Group)
Toll-free number: 1-800-458-6223
Web site: www.curesearch.org
Leukemia & Lymphoma Society
Toll-free number: 1-800-955-4572
Web site: www.lls.org
National Cancer Institute
Toll-free number: 1-800-4-CANCER (1-800-422-6237)
Web site: www.cancer.gov
National Children’s Cancer Society, Inc.
Telephone number: 1-314-241-1600
Toll-free number: 1-800-5-FAMILY (1-800-532-6459).
Web site: www.children-cancer.org
National Dissemination Center for Children with Disabilities (NICHCY)
Toll-free number: 1-800-695-0285 (also for TTY)
Web site: www.nichcy.org
Starlight Children’s Foundation
Telephone number: 1-310-479-1212
Web site: www.starlight.org
100 Questions & Answers About Your Child’s Cancer, Jones and Bartlett Publishers, 2004.
Cancer & Self-Help: Bridging the Troubled Waters of Childhood Illness, Mark A. Chester and Barbara K. Chesney. University of Wisconsin Press, 1995.
Care for Children and Adolescents with Cancer: Questions and Answers. National Cancer Institute, 2008. Available at: www.cancer.gov/cancertopics/factsheet/NCI/children-adolescents or call 1-800-332-8615.
Childhood Cancer: A Parent’s Guide to Solid Tumor Cancers, Honna Janes-Hodder and Nancy Keene. O'Reilly and Associates, 2000.
Children with Cancer: A Comprehensive Reference Guide for Parents (2nd ed.), Jeanne Munn Bracken and Pruden Pruden, Oxford University Press, 2005.
Educating the Child With Cancer: A Guide for Parents and Teachers, Nancy Keene. Candlelighters Childhood Cancer Foundation, 2003.
Living with Childhood Cancer: A Practical Guide to Help Families Cope, Leigh A. Woznick and Carol D. Goodheart, American Psychological Association, 2002.
Surviving Childhood Cancer: A Guide for Families, Margo Joan Fromer. New Harbinger Publications, 1998.
When Bad Things Happen to Good People, Harold Kushner. G.K. Hall, 1982.
When Someone You Love Is Being Treated for Cancer. National Cancer Institute, 2012. Available at: www.cancer.gov/cancertopics/coping/when-someone-you-love-is-treated, or call 1-800-332-8615.
Young People with Cancer: A Handbook for Parents. National Cancer Institute, 2003. Available at: www.cancer.gov/cancertopics/coping/youngpeople, or call 1-800-332-8615.
Your Child in the Hospital: A Practical Guide for Parents (2nd Edition), Nancy Keene and Rachel Prentice. O’Reilly & Associates. 1999. (Also available in Spanish.)
Books for teens and children
Although these books are intended for children, younger kids are helped more when an adult reads with and helps the child reflect about what different parts of the book mean to the child.
The Amazing Hannah, Look at Everything I Can Do! Amy Klett. Candlelighters Childhood Cancer Foundation, 2002. For ages 1 to 6 (also available in Spanish.).
Chemo, Craziness and Comfort: My Book about Childhood Cancer, Nancy Keene. Candlelighters Childhood Cancer Foundation, 2002. Can be ordered from www.candlelighters.org. For ages 6 to12.
Childhood Cancer Survivors: A Practical Guide to Your Future (2nd ed.), Kathy Ruccione, Nancy Keene, and Wendy Hobbie, Patient Centered Guides, 2006. For older teens.
Going to the Hospital, Fred Rogers. Paperstar Book, 1997. For ages 4 to 8.
Life Isn’t Always A Day at the Beach: A Book for All Children Whose Lives Are Affected by Cancer, Pam Ganz. Published by High-Five Publishing, 1996. Workbook for ages 6 to 10.
Little Tree: A Story for Children with Serious Medical Problems, Joyce C. Mills. Magination Press, 2003. For ages 4 to 8.
Living Well With My Serious Illness, Marge Heegaard. Published by Fairview Press, 2003. For ages 8 to 12.
Me and My Marrow, Karen Crowe. Fujsawa Healthcare, 1999. For teens.
My Book for Kids with Cansur [sic], Jason Gaes. Viking Penguin, 1998. For ages 4 to 8.
Oncology, Stupology…I Want to Go Home! Marilyn K. Hershey. Butterfly Press, 1999. For ages 8 to 12. (also available in Spanish.)
What About Me? When Brothers and Sisters Get Sick, Allan Peterkin and Frances Middendorf. Magination Press, 1992. For brothers and sisters (ages 4 to 8) of a child with cancer.
When Someone Has a Very Serious Illness: Children Can Learn to Cope With Loss and Change, Marge Heegaard. Woodland Press, 1991. For ages 6 to 12.
Why, Charlie Brown, Why? A Story About What Happens When a Friend Is Very Ill, Charles M. Schultz. Ballantine Publishing Group, 1990. For ages 6 to 12.
No matter who you are, we can help. Contact us anytime, day or night, for information and support. Call us at 1-800-227-2345 or visit www.cancer.org.
Last Medical Review: 10/09/2012
Last Revised: 01/17/2013