Additional resources for non-Hodgkin lymphoma in children
More information from your American Cancer Society
We have a lot more information that you might find helpful. Explore www.cancer.org or call our National Cancer Information Center toll-free number, 1-800-227-2345. We’re here to help you any time, day or night.
National organizations and websites*
Along with the American Cancer Society, other sources of information and support include:
American Childhood Cancer Organization (formerly Candlelighters)
Toll-free number: 1-855-858-2226
Offers information for children and teens with cancer, their siblings, and adults dealing with children with cancer. Also offers books and a special kit for children newly diagnosed with cancer, as well as some local support groups.
Children’s Oncology Group (COG)
Provides key information from the world’s largest organization devoted to childhood cancer research to help support children and their families from the time of diagnosis, through treatment, and beyond. Also has a searchable database to find the COG center closest to you.
CureSearch for Children’s Cancer
Toll-free number: 1-800-458-6223
Provides up-to-date information about childhood cancer from pediatric cancer experts. Has sections on the website for patients, families, and friends to help guide them on how to support the child with cancer.
Leukemia & Lymphoma Society
Toll-free number: 1-800-955-4572
Has an Information Resource Center, staffed by health care professionals, available via the toll free number; free publications on lymphoma, as well as other related topics (some materials are also available in Spanish); family support groups for patients, family, and friends are available in most geographical areas; free education teleconferences and webcasts (schedule is available on the website; also has a program to assist patients with significant financial need to cover some of the costs associated with transportation, drug co-pays, and insurance premiums.
National Cancer Institute
Toll-free number: 1-800-4-CANCER (1-800-422-6237)
Provides accurate, up-to-date information about cancer for patients and their families, including clinical trials information. Offers a special booklet for teen siblings of a child with cancer at: www.cancer.gov/cancertopics/when-your-sibling-has-cancer.
National Children’s Cancer Society, Inc.
Toll-free number: 1-800-5-FAMILY (1-800-532-6459).
Services include an online support network for parents of children with cancer, educational materials, and financial assistance for treatment-related expenses.
National Dissemination Center for Children with Disabilities (NICHCY)
Toll-free number: 1-800-695-0285 (also for TTY)
Provides information about disabilities and disability-related issues for families, educators, and other professionals.
Websites for teens and children
Starlight Children’s Foundation
Toll-free number: 1-310-479-1212
Website has animated stories and interactive programs to teach kids about chemo and procedures that are done in the hospital; also has videos specifically for teens and provides a safe, monitored online support group for teens with cancer.
Group Loop (a subsite of the Cancer Support Community just for teens)
Toll-free number: 1-888-793-9355
An online place for teens with cancer or teens who know someone with cancer to connect with other teens away from the pressures of classes, responsibilities, and treatment schedules. Has online support groups, chat rooms, information, and more.
Teens Living with Cancer
An online-only resource dedicated to teens coping with a cancer diagnosis and treatment. It focuses on teen issues and provides resources to support teens, their families, and friends.
SuperSibs! powered by Alex’s Lemonade Stand
Toll-free number: 1-866-333-1213
Supports, honors, and recognizes brothers and sisters of children diagnosed with cancer so they may face the future with strength, courage, and hope. Alex’s Lemonade Stand is restarting SuperSibs in 2014 so there may be some delays with resuming support services.
Last Medical Review: 03/07/2014
Last Revised: 01/27/2016