What should you ask your child`s doctor about non-Hodgkin lymphoma?
It is important to have open, honest discussions with your child’s cancer care team. They want to answer all of your questions, no matter how minor they might seem. For instance, consider asking these questions:
- What kind of non-Hodgkin lymphoma does my child have?
- What is the stage (extent) of the lymphoma, and what does that mean in our case?
- Are there other tests that need to be done before we can decide on treatment?
- Are there other doctors we need to see?
- How much experience do you have treating this type of lymphoma?
- Should we get a second opinion before starting treatment? Can you suggest someone?
- What treatment choices do we have?
- What do you recommend and why?
- What should we do to be ready for treatment?
- How long will treatment last? What will it involve? Where will it be done?
- How will treatment affect our daily activities?
- What are the risks or side effects to the treatments you suggest?
- Which side effects start shortly after treatment and which ones might develop later on?
- How might treatment affect my child’s ability to learn, grow, and develop?
- What are the chances of curing the lymphoma?
- What would our options be if the treatment doesn’t work or if the lymphoma recurs?
- What type of follow-up will my child need after treatment?
You should also talk with your child's doctor before treatment to find out about the possible long-term side effects. For example, you may want to ask about how it may affect fertility. The doctor may recommend a counselor or fertility specialist to discuss available options and help with the decision-making process. Here are some questions you might want to ask about the risk of infertility with treatment:
- Will this treatment have an effect on my child’s ability to have children someday?
- Is there anything that can be done to prevent infertility? Would this interfere with my child’s cancer treatment?
- If my child becomes infertile, what are the options for having a family?
- Should we talk to a fertility specialist?
- Once my child finishes treatment, how will we know if he/she is might have fertility problems?
Along with these sample questions, be sure to write down your own. For instance, you might want more information about recovery times so that you can plan your work and school schedules. Or you may want to ask about clinical trials for which your child may qualify.
Last Medical Review: 10/09/2012
Last Revised: 01/17/2013