It is important to have open, honest discussions with your child’s cancer care team. They want to answer all of your questions, no matter how minor they might seem. For instance, consider asking these questions:
- What kind of non-Hodgkin lymphoma does my child have?
- What is the stage (extent) of the lymphoma, and what does that mean in our case?
- What tests need to be done before we can decide on treatment?
- Do we need to see other doctors?
- How much experience do you have treating this type of lymphoma?
- Should we get a second opinion before starting treatment?
- What are our treatment choices?
- What do you recommend and why?
- How soon do we need to start treatment?
- What should we do to be ready for treatment?
- How long will treatment last? What will it be like? Where will it be done?
- How much of the treatment will need to be done in the hospital?
- How will treatment affect our daily activities?
- What are the risks and side effects of the treatments you suggest?
- Which side effects start shortly after treatment and which ones might develop later on?
- Will treatment affect my child’s ability to learn, grow, and develop?
- What are the chances of curing the lymphoma?
- What would our options be if the treatment doesn’t work or if the lymphoma comes back?
- What type of follow-up will my child need after treatment?
You should also talk with your child’s doctor before treatment to find out about the possible long-term side effects. For example, you may want to ask about how it may affect your child’s fertility later on. Here are some questions you might want to ask about the risk of infertility with treatment:
- Will this treatment have an effect on my child’s ability to have children someday?
- Is there anything that can be done to prevent or lower the risk of infertility? Would this interfere with my child’s cancer treatment?
- If my child becomes infertile, what are their options for having a family?
- Should we talk to a fertility specialist?
- Once my child finishes treatment, how will we know if they might have fertility problems?
Along with these sample questions, be sure to write down your own. For instance, you might want more information about recovery times so that you can plan your work and school schedules. Or you may want to ask about clinical trials for which your child may qualify.
Last Revised: 01/27/2016