Additional resources for retinoblastoma
More information from your American Cancer Society
Here is more information you might find helpful. You also can order free copies of our documents from our toll-free number, 1-800-227-2345, or read them on our website, www.cancer.org
Children with cancer
Talking With Your Doctor (also in Spanish)
Children Diagnosed With Cancer: Dealing with Diagnosis (also in Spanish)
Pediatric Cancer Centers (also in Spanish)
Children Diagnosed With Cancer: Understanding the Health Care System (also in Spanish)
Coping with cancer
After Diagnosis: A Guide for Patients and Families (also in Spanish)
Family and Medical Leave Act (FMLA) (also in Spanish)
Nutrition for Children With Cancer (also in Spanish)
What Happened to You, Happened to Me (children’s booklet)
When Your Brother or Sister Has Cancer (children’s booklet)
Cancer treatment information
Understanding Cancer Surgery: A Guide for Patients and Families (also in Spanish)
A Guide to Chemotherapy (also in Spanish)
Understanding Radiation Therapy: A Guide for Patients and Families (also in Spanish)
Clinical Trials: What You Need to Know (also in Spanish)
Cancer treatment side effects
Guide to Controlling Cancer Pain (also in Spanish)
Your American Cancer Society also has books that you might find helpful. Call us at 1-800-227-2345 or visit our bookstore online at cancer.org/bookstore to find out about costs or to place an order.
For family and friends of the child
American Cancer Society Complete Guide to Family Caregiving, Second Edition
Because... Someone I Love Has Cancer (kids’ activity book)
Jacob Has Cancer: His Friends Want to Help (coloring book for a child with a friend who has cancer)
For the child with cancer
Imagine What’s Possible: Use the Power of Your Mind to Take Control of Your Life During Cancer (grades 4 through 6)
Let My Colors Out (picture book for ages 5 to 10)
The Long and the Short of It: A Tale About Hair (ages 7 and up)
National organizations and websites*
Along with the American Cancer Society, other sources of information and support include:
Websites for parents and adults
American Childhood Cancer Organization (formerly Candlelighters)
Toll-free number: 1-855-858-2226
Offers information for children and teens with cancer, their siblings, and adults dealing with children with cancer. Also offers books and a special kit for children newly diagnosed with cancer, as well as some local support groups.
Children’s Oncology Group (COG)
Provides key information from the world’s largest organization devoted to childhood cancer research to help support children and their families from the time of diagnosis, through treatment, and beyond. Also has a searchable database to find the COG center closest to you.
CureSearch for Children’s Cancer
Toll-free number: 1-800-458-6223
Provides up-to-date information about childhood cancer from pediatric cancer experts. Has sections on the website for patients, families, and friends to help guide them on how to support the child with cancer.
National Cancer Institute
Toll-free number: 1-800-4-CANCER (1-800-422-6237)
Provides accurate, up-to-date information about cancer for patients and their families, including clinical trials information. Offers a special booklet for teen siblings of a child with cancer at: www.cancer.gov/cancertopics/when-your-sibling-has-cancer.
National Children’s Cancer Society, Inc.
Toll-free number: 1-800-5-FAMILY (1-800-532-6459)
Services include an online support network for parents of children with cancer, educational materials, and financial assistance for treatment-related expenses.
National Dissemination Center for Children with Disabilities (NICHCY)
Toll-free number: 1-800-695-0285 (also for TTY)
Provides information about disabilities and disability-related issues for families, educators, and other professionals.
Websites for children
Starlight Children’s Foundation
Toll-free number: 1-800-315-2580
Website has animated stories and interactive programs to teach kids about chemo and procedures that may be done in the hospital; also has videos specifically for teens and provides a safe, monitored online support group for teens with cancer.
SuperSibs! powered by Alex’s Lemonade Stand
Toll-free number: 1-866-333-1213
Supports, honors, and recognizes 4- to 18-year-old brothers and sisters of children diagnosed with cancer so they may face the future with strength, courage, and hope. Alex’s Lemonade Stand is restarting SuperSibs in 2014 so there may be some delays with resuming support services.
No matter who you are, we can help. Contact us any time day or night for information and support. Call us at 1-800-227-2345 or visit www.cancer.org.
Last Medical Review: 12/05/2013
Last Revised: 12/05/2013