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After Treatment TOPICS

Keeping good medical records after treatment for retinoblastoma

As much as you may want to put the experience behind you once treatment is completed, it is also very important to keep good records of your child’s medical care during this time. This can be very helpful for your child later on as an adult and for his or her doctors. Gathering these details soon after treatment may be easier than trying to get them at some point in the future. Be sure your child’s doctors have the following information:

  • A copy of the pathology report(s) from any biopsies or surgeries
  • If your child had surgery, a copy of the operative report(s)
  • If your child stayed in the hospital, copies of the discharge summaries that doctors prepare when patients are sent home
  • If chemotherapy was given, a list of the drugs, drug doses, and when they were given
  • If radiation therapy was given, a summary of the type and dose of radiation and when and where it was given
  • If genetic testing was done, the results of those tests

It is also very important to keep health insurance. Tests and doctor visits cost a lot, and even though no one wants to think of the cancer coming back, this could happen.

Last Medical Review: 12/05/2013
Last Revised: 12/05/2013