+ -Text Size

Treating Retinoblastoma TOPICS

Clinical trials for retinoblastoma

You may have had to make a lot of decisions since you’ve been told your child has retinoblastoma. One of the most important decisions you will make is deciding which treatment is best. You might have heard about clinical trials being done for this type of cancer. Or maybe someone on your health care team has mentioned a clinical trial to you.

Clinical trials are carefully controlled research studies that are done with patients who volunteer for them. These studies are done to learn more about promising new treatments or procedures.

Clinical trials are one way to get state-of-the-art cancer care for your child. Sometimes they may be the only way to get access to some newer treatments. They are also the best way for doctors to learn better methods to treat cancer. Still, they might not be right for every child.

If you would like to learn more about clinical trials your child may be eligible for, start by asking your doctor if your clinic or hospital conducts clinical trials. Children’s cancer centers often conduct many clinical trials at any one time, and in fact most children treated at these centers take part in a clinical trial as part of their treatment.

You can also call our clinical trials matching service for a list of studies that might meet your child’s needs. You can reach this service at 1-800-303-5691 or on our website at You can also get a list of current clinical trials by calling the National Cancer Institute (NCI) at 1-800-4-CANCER (1-800-422-6237) or by visiting the NCI clinical trials website at

Your child will have to meet certain requirements to take part in any clinical trial. If your child does qualify for a clinical trial, you will have to decide whether or not to enter (enroll) the child into it.

To learn more about clinical trials, see Clinical Trials: What You Need to Know.

Last Medical Review: 03/12/2015
Last Revised: 03/12/2015