- How is retinoblastoma treated?
- Surgery (enucleation) for retinoblastoma
- Radiation therapy for retinoblastoma
- Laser therapy (photocoagulation) for retinoblastoma
- Cryotherapy for retinoblastoma
- Thermotherapy for retinoblastoma
- Chemotherapy for retinoblastoma
- High-dose chemotherapy and stem cell transplant for retinoblastoma
- Clinical trials for retinoblastoma
- Complementary and alternative therapies for retinoblastoma
- Treatment of retinoblastoma, based on extent of the disease
- More treatment information for retinoblastoma
Clinical trials for retinoblastoma
You may have had to make a lot of decisions since you’ve been told your child has retinoblastoma. One of the most important decisions you will make is deciding which treatment is best. You may have heard about clinical trials being done for this type of cancer. Or maybe someone on your health care team has mentioned a clinical trial to you.
Clinical trials are carefully controlled research studies that are done with patients who volunteer for them. These studies are done to get a closer look at promising new treatments or procedures.
Clinical trials are one way to get state-of-the-art cancer care for your child. Sometimes they may be the only way to get access to some newer treatments. They are also the only way for doctors to learn better methods to treat cancer. Still, they might not be right for every child.
If you would like to find out more about clinical trials your child may be eligible for, you should start by asking your doctor if your clinic or hospital conducts clinical trials. Children’s cancer centers often conduct many clinical trials at any one time, and in fact most children treated at these centers take part in a clinical trial as part of their treatment.
You can also call our clinical trials matching service for a list of clinical trials that might meet your child’s needs. You can reach this service at 1-800-303-5691 or on our website at www.cancer.org/clinicaltrials. You can also get a list of current clinical trials by calling the National Cancer Institute Cancer Information Service toll free at 1-800-4-CANCER (1-800-422-6237) or by visiting the NCI clinical trials website at www.cancer.gov/clinicaltrials.
Your child will have to meet certain requirements to take part in any clinical trial. If your child does qualify for a clinical trial, you will have to decide whether or not to enter (enroll) the child into it. Older children, who can understand more, usually must also agree to take part in the clinical trial before the parents’ consent is accepted.
You can get a lot more information on clinical trials in our document Clinical Trials: What You Need to Know. You can read it on our website or call us at (1-800-227-2345) to have it sent to you.
Last Medical Review: 12/05/2013
Last Revised: 12/05/2013