Additional resources for rhabdomyosarcoma
More information from your American Cancer Society
Here is more information you might find helpful. You also can order free copies of our documents from our toll-free number, 1-800-227-2345, or read them on our website, www.cancer.org.
Children with cancer
Children Diagnosed With Cancer: Dealing with Diagnosis (also in Spanish)
Pediatric Cancer Centers (also in Spanish)
Children Diagnosed With Cancer: Understanding the Health Care System (also in Spanish)
Talking With Your Doctor (also in Spanish)
Coping with cancer
After Diagnosis: A Guide for Patients and Families (also in Spanish)
Family and Medical Leave Act (FMLA) (also in Spanish)
Nutrition for Children With Cancer (also in Spanish)
What Happened to You, Happened to Me (children’s booklet)
When Your Brother or Sister Has Cancer (children’s booklet)
Cancer treatment information
A Guide to Cancer Surgery (also in Spanish)
A Guide to Chemotherapy (also in Spanish)
Understanding Radiation Therapy: A Guide for Patients and Families (also in Spanish)
Clinical Trials: What You Need to Know (also in Spanish)
Cancer treatment side effects
Your American Cancer Society also has books that you might find helpful. Call us at 1-800-227-2345 or visit our bookstore online at www.cancer.org/bookstore to find out about costs or to place an order.
National organizations and websites*
Along with the American Cancer Society, other sources of information and support include:
Websites for parents and adults
American Childhood Cancer Organization (formerly Candlelighters)
Toll-free number: 1-855-858-2226
Offers information for children and teens with cancer, their siblings, and adults dealing with children with cancer. Also offers books and a special kit for children newly diagnosed with cancer, as well as some local support groups.
Amputee Coalition of America
Toll-free number: 1-800-AMP-KNOW (1-800-267-5669)
Offers resources for specific groups with amputations, including parents and youth (see their “Limb Loss Resource Center” online); also lists some local support groups across the country.
Children’s Oncology Group (COG)
Information from the world’s largest organization devoted to childhood cancer research to help support children and their families from the time of diagnosis, through treatment, and beyond. Also has a searchable database to find the COG center closest to you.
CureSearch for Children’s Cancer
Toll-free number: 1-800-458-6223
Provides up-to-date information about childhood cancer from pediatric cancer experts. Has sections on the website for patients, families, and friends to help guide them on how to support the child with cancer.
National Cancer Institute
Toll-free number: 1-800-4-CANCER (1-800-422-6237)
Provides accurate, up-to-date information about cancer for patients and their families, including clinical trials information. Offers a special booklet for teen siblings of a child with cancer at: www.cancer.gov/cancertopics/when-your-sibling-has-cancer.
National Children’s Cancer Society, Inc.
Toll-free number: 1-800-5-FAMILY (1-800-532-6459)
Services include an online support network for parents of children with cancer, educational materials, and financial assistance for treatment-related expenses.
Websites for teens and children
Starlight Children’s Foundation
Toll-free number: 1-310-479-1212
Website has animated stories and interactive programs to teach kids about chemo and procedures that may be done in the hospital; also has videos specifically for teens and provides a safe, monitored online support group for teens with cancer.
Group Loop (a subsite of the Cancer Support Community just for teens)
Toll-free number: 1-888-793-9355
An online place for teens with cancer or teens who know someone with cancer to connect with other teens – away from the pressures of classes, responsibilities, and treatment schedules. Has online support groups, chat rooms, information, and more.
Teens Living with Cancer
An online-only resource dedicated to teens coping with a cancer diagnosis and treatment. It focuses on teen issues and provides resources to support teens, their families, and friends.
SuperSibs! Powered by Alex’s Lemonade Stand
Toll-free number: 1-866-333-1213
Supports, honors, and recognizes brothers and sisters of children diagnosed with cancer so they may face the future with strength, courage, and hope. (Alex’s Lemonade Stand is restarting SuperSibs in 2014, so there may be some delays with resuming support services.)
No matter who you are, we can help. Contact us anytime day or night for information and support. Call us at 1-800-227-2345 or visit www.cancer.org.
Last Medical Review: 11/20/2014
Last Revised: 11/21/2014