Rhabdomyosarcoma

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Additional resources for rhabdomyosarcoma

More information from your American Cancer Society

Here is more information you might find helpful. You also can order free copies of our documents from our toll-free number, 1-800-227-2345, or read them on our website, www.cancer.org.

Children with cancer

Children Diagnosed With Cancer: Dealing with Diagnosis (also in Spanish)

Pediatric Cancer Centers (also in Spanish)

Children Diagnosed With Cancer: Understanding the Health Care System (also in Spanish)

Children Diagnosed With Cancer: Financial and Insurance Issues

Children Diagnosed With Cancer: Returning to School

Children Diagnosed With Cancer: Late Effects of Cancer Treatment

Health Professionals Associated With Cancer Care

Talking With Your Doctor (also in Spanish)

Coping with cancer

After Diagnosis: A Guide for Patients and Families (also in Spanish)

Family and Medical Leave Act (FMLA) (also in Spanish)

Nutrition for Children With Cancer (also in Spanish)

What Happened to You, Happened to Me (children’s booklet)

When Your Brother or Sister Has Cancer (children’s booklet)

When Your Child’s Treatment Ends: A Guide for Families (booklet)

Cancer treatment information

A Guide to Cancer Surgery (also in Spanish)

A Guide to Chemotherapy (also in Spanish)

Understanding Radiation Therapy: A Guide for Patients and Families (also in Spanish)

Clinical Trials: What You Need to Know (also in Spanish)

Stem Cell Transplant (Peripheral Blood, Bone Marrow, and Cord Blood Transplants) (also in Spanish)

Cancer treatment side effects

Caring for the Patient with Cancer at Home: A Guide for Patients and Families (also in Spanish)

Nausea and Vomiting

Anemia in People With Cancer

Fatigue in People With Cancer

Fertility and Women With Cancer

Fertility and Men With Cancer

Second Cancers Caused by Cancer Treatment

Books

Your American Cancer Society also has books that you might find helpful. Call us at 1-800-227-2345 or visit our bookstore online at www.cancer.org/bookstore to find out about costs or to place an order.

National organizations and websites*

Along with the American Cancer Society, other sources of information and support include:

Websites for parents and adults

American Childhood Cancer Organization (formerly Candlelighters)
Toll-free number: 1-855-858-2226
Website: www.acco.org

    Offers information for children and teens with cancer, their siblings, and adults dealing with children with cancer. Also offers books and a special kit for children newly diagnosed with cancer, as well as some local support groups.

Amputee Coalition of America
Toll-free number: 1-800-AMP-KNOW (1-800-267-5669)
Website: www.amputee-coalition.org

    Offers resources for specific groups with amputations, including parents and youth (see their “Limb Loss Resource Center” online); also lists some local support groups across the country.

Children’s Oncology Group (COG)
Website: www.childrensoncologygroup.org

    Information from the world’s largest organization devoted to childhood cancer research to help support children and their families from the time of diagnosis, through treatment, and beyond. Also has a searchable database to find the COG center closest to you.

CureSearch for Children’s Cancer
Toll-free number: 1-800-458-6223
Website: www.curesearch.org

    Provides up-to-date information about childhood cancer from pediatric cancer experts. Has sections on the website for patients, families, and friends to help guide them on how to support the child with cancer.

National Cancer Institute
Toll-free number: 1-800-4-CANCER (1-800-422-6237)
TTY: 1-800-332-8615
Website: www.cancer.gov

National Children’s Cancer Society, Inc.
Toll-free number: 1-800-5-FAMILY (1-800-532-6459)
Website: www.children-cancer.org

    Services include an online support network for parents of children with cancer, educational materials, and financial assistance for treatment-related expenses.

Websites for teens and children

Starlight Children’s Foundation
Toll-free number: 1-310-479-1212
Website: www.starlight.org

    Website has animated stories and interactive programs to teach kids about chemo and procedures that may be done in the hospital; also has videos specifically for teens and provides a safe, monitored online support group for teens with cancer.

Group Loop (a subsite of the Cancer Support Community just for teens)
Toll-free number: 1-888-793-9355
Website: www.grouploop.org

    An online place for teens with cancer or teens who know someone with cancer to connect with other teens – away from the pressures of classes, responsibilities, and treatment schedules. Has online support groups, chat rooms, information, and more.

Teens Living with Cancer
Website: www.teenslivingwithcancer.org

    An online-only resource dedicated to teens coping with a cancer diagnosis and treatment. It focuses on teen issues and provides resources to support teens, their families, and friends.

SuperSibs! Powered by Alex’s Lemonade Stand
Toll-free number: 1-866-333-1213
Website: www.supersibs.org

    Supports, honors, and recognizes brothers and sisters of children diagnosed with cancer so they may face the future with strength, courage, and hope. (Alex’s Lemonade Stand is restarting SuperSibs in 2014, so there may be some delays with resuming support services.)

*Inclusion on this list does not imply endorsement by the American Cancer Society.

No matter who you are, we can help. Contact us anytime day or night for information and support. Call us at 1-800-227-2345 or visit www.cancer.org.


Last Medical Review: 11/20/2014
Last Revised: 11/21/2014