Living as a melanoma skin cancer survivor
For many people with melanoma, treatment can remove or destroy the cancer. Completing treatment can be both stressful and exciting. You may be relieved to finish treatment, but find it hard not to worry about cancer growing or coming back. (When cancer comes back after treatment, it is called recurrent cancer or a recurrence.) This is very common if you’ve had cancer.
For others, melanoma may never go away completely. These people may get regular treatment with immunotherapy, targeted therapy, chemotherapy, or other treatments to try to help keep the cancer under control for as long as possible. Learning to live with cancer that does not go away can be difficult and very stressful.
Ask your doctor for a survivorship care plan
Talk with your doctor about developing a survivorship care plan for you. This plan might include:
- A suggested schedule for follow-up exams and tests
- A schedule for other tests you might need in the future, such as early detection (screening) tests for other types of cancer, or tests to look for long-term health effects from your cancer or its treatment
- A list of possible late- or long-term side effects from your treatment, including what to watch for and when you should contact your doctor
- Diet and physical activity suggestions
Follow-up after melanoma
Even if you’ve completed treatment, your doctors will still want to watch you closely. Along with the risk of the melanoma coming back, people who have had melanoma have a high risk of developing another one, so it’s very important to keep all follow-up appointments. During these visits, your doctors will ask about any problems you are having and may do exams and lab tests or imaging tests to look for signs of cancer or treatment side effects.
Some treatment side effects might last a long time or might not even show up until years after you have finished treatment. Your doctor visits are a good time to ask questions and talk about any changes or problems you notice or concerns you have.
Exams and tests
Your follow-up schedule should include regular skin and lymph node exams by yourself and by your doctor. How often you need follow-up doctor visits depends on the stage of your melanoma when you were diagnosed and other factors. In addition to the exams, imaging tests such as x-rays or CT scans may be recommended for some patients.
A typical follow-up schedule for people with early-stage melanomas that were removed completely generally calls for physical exams every 6 to 12 months for several years. If these exams are normal, the time between your doctor visits may be extended. Your doctor may recommend more frequent exams if you have many moles or atypical moles.
For thicker melanomas or those that had spread beyond the skin, a typical schedule might include physical exams every 3 to 6 months for several years. After that, exams might be done less often. Imaging tests such as chest x-rays or CT scans might be done as well, especially for people who had more advanced stage disease.
It’s also important for melanoma survivors to do regular self-exams of their skin and lymph nodes. Most doctors recommend this at least monthly. You should see your doctor if you find any new lump or change in your skin. You should also report any new symptoms (for example, pain, cough, fatigue, loss of appetite) that don’t go away. Melanoma can sometimes come back many years after it was first treated.
People with melanoma that doesn’t go away completely with treatment will have a follow-up schedule that is based on their specific situation.
Keeping health insurance and copies of your medical records
Even after treatment, it’s very important to keep health insurance. Tests and doctor visits cost a lot, and even though no one wants to think of their cancer coming back, this could happen.
At some point after your cancer treatment, you might find yourself seeing a new doctor who doesn’t know about your medical history. It’s important to keep copies of your medical records to give your new doctor the details of your diagnosis and treatment. Learn more in Keeping Copies of Important Medical Records.
Can I lower my risk of the melanoma progressing or coming back?
If you have (or have had) melanoma, you probably want to know if there are things you can do that might lower your risk of the cancer coming back, or of getting a new skin cancer.
At this time, not enough is known about melanoma to say for sure if there are things you can do that will be helpful. We do know that people who have had melanoma are at higher risk for developing another melanoma or other type of skin cancer. Because of this, it’s very important to limit your exposure to UV rays (from the sun or tanning beds) and to continue to examine your skin every month for signs of melanoma coming back or possible new skin cancers. Skin cancers that are found early are typically much easier to treat than those found at a later stage.
Adopting healthy behaviors such as not smoking, eating well, being active, and staying at a healthy weight might help as well, but no one knows for sure. However, we do know that these types of changes can have positive effects on your health that can extend beyond your risk of melanoma or other cancers.
About dietary supplements
So far, no dietary supplements (including vitamins, minerals, and herbal products) have been shown to clearly help lower the risk of melanoma progressing or coming back. This doesn’t mean that no supplements will help, but it’s important to know that none have been proven to do so.
Dietary supplements are not regulated like medicines in the United States – they do not have to be proven effective (or even safe) before being sold, although there are limits on what they’re allowed to claim they can do. If you are thinking about taking any type of nutritional supplement, talk to your health care team. They can help you decide which ones you can use safely while avoiding those that might be harmful.
If the cancer comes back
If melanoma does come back at some point, your treatment options will depend on where the cancer is, what treatments you’ve had before, and your overall health. For more on how recurrent cancer is treated, see Treatment of melanoma skin cancer by stage. For more general information on dealing with a recurrence, you might also want to read When Your Cancer Comes Back: Cancer Recurrence.
Could I get a second cancer after melanoma treatment?
People who’ve had melanoma can still get other cancers. In fact, melanoma survivors are at higher risk for getting some other types of cancer. Learn more in Second cancers after melanoma skin cancer.
Getting emotional supp
Some amount of feeling depressed, anxious, or worried is normal when melanoma is a part of your life. Some people are affected more than others. But everyone can benefit from help and support from other people, whether friends and family, religious groups, support groups, professional counselors, or others.
Last Medical Review: 05/19/2016
Last Revised: 05/20/2016