For many people with melanoma, treatment can remove or destroy the cancer. Finishing treatment can be both stressful and exciting. You may be relieved to finish treatment, but find it hard not to worry about cancer growing or coming back. (When cancer comes back after treatment, it is called a recurrence.) This is a very common concern in people who have had cancer.
It may take a while before your fears lessen. But it may help to know that many cancer survivors have learned to live with this uncertainty and are leading full lives. Living With Uncertainty: The Fear of Cancer Recurrence covers more about this.
For others, the melanoma may never go away completely. These people may get regular treatment with immunotherapy, targeted therapy, chemotherapy, or other treatments to try to help keep the cancer in check. Learning to live with cancer that doesn’t go away can be hard and very stressful. It has its own type of uncertainty. When Cancer Doesn’t Go Away has more information about this.
Even if you have completed treatment, your doctors will still want to watch you closely. Follow-up is needed to watch for treatment side effects and to check for signs the cancer has come back or spread. This is a good time for you to ask your health care team any questions you need answered and to discuss any concerns you have.
Your follow-up should include regular skin and lymph node exams by yourself and by your doctor. Along with these exams, imaging tests such as x-rays or CT scans may be recommended for some patients.
A person who has had one melanoma is still at risk for having another melanoma or another type of skin cancer. It’s very important for melanoma survivors to regularly examine their skin and avoid too much sun. See your doctor if you find any new lump or change in your skin. You should also tell your doctor about any new symptoms that do not go away (for instance, pain, cough, tiredness, loss of appetite). Melanoma can sometimes come back many years after it was first treated.
If melanoma does come back, treatment will depend on where the cancer is, what treatments you’ve had before, and your overall health. For more information on how recurrent cancer is treated, see our document Melanoma Skin Cancer. For more details on dealing with a recurrence in general you might also want to read When Your Cancer Comes Back: Cancer Recurrence.
Seeing a new doctor
At some point after your treatment, you may be seeing a new doctor. It’s important that you be able to give your new doctor the details of your diagnosis and treatment. Gathering these details during and soon after treatment may be easier than trying to get them at some point in the future. Make sure you have this information handy (and always keep copies for yourself):
- A copy of your pathology report from any biopsy or surgery
- Copies of imaging tests (CT or MRI scans, etc.), which can usually be stored digitally (on a DVD, etc.)
- If you had surgery, a copy of your operative report
- If you stayed in the hospital, a copy of the discharge summary that the doctor wrote when you were sent home
- If you had radiation treatment, a summary of the type and dose of radiation and when and where it was given
- If you had immunotherapy, targeted therapy, or chemotherapy, a list of your drugs, drug doses, and when you took them
- Contact information for doctors who have treated your cancer
It is also very important to keep health insurance. Tests and doctor visits cost a lot, and even though no one wants to think of their cancer coming back, this could happen.
Last Revised: 02/01/2016