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More information from Your American Cancer
Society
We have selected some related information that may also be
helpful to you. These materials may be ordered from our toll-free
number, 1-800-227-2345.
- When Your Child's Treatment Ends
The following books are available from your American Cancer
Society. Call us at 1-800-227-2345 to ask about costs or to place your
order.
National organizations and Web sites*
Candlelighters™
Childhood Cancer Foundation
Toll-free number: 1-800-366-2223
Web site: www.candlelighters.org
(note that this web site has sub-sections just for children and teens
with cancer and their siblings, as well as for adults)
CureSearch (National
Childhood Cancer Foundation and Children's Oncology Group)
Toll-free number: 1-800-458-6223
Web site: www.curesearch.org
National Cancer
Institute
Toll-free number: 1-800-4-CANCER (1-800-422-6237)
Web site: www.cancer.gov
Hair Club for
Kids
Toll-free number: 1-800-269-7384 (If reach voicemail, leave a message
for a return call.)
Web site: www.hairclub.com/hc_for_kids.php
Offers free hair restoration services to children ages 6 through 17 who
have hair loss due to cancer treatments.
The National
Children's Cancer Society, Inc.
Toll-free number: 1-800-532-6459 (1-800-5-FAMILY)
Web site: www.children-cancer.org
CaringBridge
- Web site, support and email
Toll-free number: 1-651-789-2300
Web site: www.caringbridge.org
CaringBridge provides free, personal Web sites that help you stay
connected to family and friends during illness, treatment, and
recovery. It lets patients and caregivers keep loved ones informed.
National
Coalition
for Cancer Survivorship
Toll-free number: 1-888-650-9127
1-877-NCCS-YES (1-877-622-7937) for some publications and Cancer
Survivor Toolbox® orders
Web site: www.canceradvocacy.org
Patient Advocate
Foundation
Toll-free number: 1-800-532-5274
Web site: www.patientadvocate.org
The Patient Advocate Foundation (PAF) works with the patient and their
insurer, employer and/or creditors to resolve insurance, job retention
and/or debt crisis matters due to their diagnosis. PAF seeks to
safeguard patients through assuring access to care, helping them keep
their jobs and financial stability.
Starlight
Starbright Children's Foundation
Toll-free number: 1-800-315-2580
Web site: www.starlight.org
Web site has animated stories and interactive programs to teach kids
about the procedures that may be done in the hospital; also provides
safe, monitored online support group for teens with cancer.
American Pain
Foundation
Toll-free number: 1-888-615-7246
Web site: www.painfoundation.org
The Lance
Armstrong Foundation
Toll-free number: 1-866-673-7205
Web site: www.livestrong.org
The Lance Armstrong Foundation (LAF) unites people to fight cancer,
believing that unity is strength, knowledge is power and attitude is
everything. LAF works to provide the information and tools people
battling cancer need to live life on their own terms
The Leukemia
& Lymphoma Society
Toll-free number: 1-800-955-4572
Web site: www.lls.org
National Brain
Tumor Foundation
Toll-free number: 1-800-934-2873 or 1-800-934-CURE
Web site: www.braintumor.org
American Brain
Tumor Association
Toll-free number: 1-800-886-2282
Web site: www.abta.org
Children's Brain
Tumor Foundation
Toll-free number: 1-866-228- HOPE (1-866-228-4673)
Web site: www.cbtf.org
Offers a support line, as well as Web-based and printed information for
parents and children with cancer.
National
Organization for Rare Disorders
Toll-free number:1- 800-999-6673
Web site: www.rarediseases.org
The National Organization for Rare Disorders (NORD) is a federation of
more than 2,000 non-profit voluntary health organizations serving
people with rare "orphan" disorders. NORD keeps data on resources and
refers to organizations only (they do not refer to healthcare providers
or treatment facilities).
Web Sites for Teens and Children
2bMe
www.2bme.org
2bMe is part of Look Good...Feel Better for Teens. For those aged 13
through 17, it gives information on a many appearance-related, social,
and nutritional side effects of treatment.
Beyond the Cure
(part of the National Children's Cancer Society for teens)
Web site: www.beyondthecure.org
Support and education for survivors of childhood cancer and their
families
Fertile hope
Toll-free number: 1-888-994-4673
Web site: www.fertilehope.org
To give information on having children in the future to cancer patients
whose medical treatments cause the risk of infertility.
Group Loop
Toll-free number: 1-888-793-9355 (the Wellness Community)
Web site: www.grouploop.org
An online resource for teens with cancer and their parents –
away from the daily pressures of classes, responsibilities, and
treatment schedules – to connect with other teens. Group Loop
includes online support groups, chat rooms, educational resources and
more.
Cancer.net (was:
People Living with Cancer)
Web site: www.cancer.net/patient/Coping
(Choose "Age-specific information," then either "teens" or "children")
Cancer Kids
– Helping children tell their stories to the world
(web only)
Web site: www.cancerkids.com
CancerKids is an online-only resource designed to help kids, from ages
5 to 11, learn about cancer in a fun and interactive manner
Teens Living
with Cancer
Web site: www.teenslivingwithcancer.org
Teens Living with Cancer is an online-only resource dedicated to teens
coping with a cancer diagnosis and treatment. Teens Living with Cancer
focuses on teen issues and provides resources to support teens, their
families and friends
I'm too young
for this
Web site: http://i2y.com
This is a social networking organization for young adult cancer
survivors and care providers that offers support to help improve
quality of life for young adults affected by cancer. i[2]y describes
young adults as 15 to 39 years old.
SuperSibs!
Toll-free number: 1-866-444-7427
Web site: www.supersibs.org
Supports, honors, and recognizes brothers and sisters of children
diagnosed with cancer so they may face the future with strength,
courage, and hope.
Other publications*
Books for adults
Cancer
& Self-Help: Bridging the Troubled Waters of Childhood Illness
by Mark A. Chester and Barbara K. Chesney. University of Wisconsin
Press, 1995.
Childhood Brain
and Spinal Cord Tumors: A Guide for Families, Friends, and Caregivers,
by Tania Shiminski-Maher, Patsy McGuire Cullen, and Maria Sansalone.
O'Reilly and Associates, 2001.
Childhood
Cancer: A Parent's Guide to Solid Tumor Cancers, by Honna
Janes-Hodder and Nancy Keene. O'Reilly and Associates, 1999.
Childhood
Cancer: A Handbook from St Jude Children's Research Hospital,
by Grant Steen and Joseph Mirro (editors). Perseus Publishing, 2000.
Childhood
Cancer Survivors: A Practical Guide to Your Future, by
Nancy Keene, Wendy Hobbie, and Kathy Ruccione. O'Reilly and Associates,
2000.
Children with
Cancer: A Comprehensive Reference Guide for Parents by
Jeanne Munn Bracken and Pruden Pruden. 2nd Ed. Oxford University Press,
2005.
Educating The
Child With Cancer: A Guide for Parents and Teachers,
edited by Nancy Keene. Candlelighters Childhood Cancer Foundation,
2003.
Living with
Childhood Cancer: A Practical Guide to Help Families Cope,
by Leigh A. Woznick and Carol D. Goodheart. American Psychological
Association, 2002.
Surviving
Childhood Cancer: A Guide for Families by Margo Joan
Fromer. New Harbinger Publications, 1998.
When Bad Things
Happen to Good People by Harold Kushner. G.K. Hall, 1982.
Young People
with Cancer: A Handbook for Parents. National Cancer
Institute, 2003. Available online at:
http://www.cancer.gov/cancertopics/youngpeople
Your Child in
the Hospital: A Practical Guide for Parents. 2nd Ed. by
Nancy Keene. O'Reilly & Associates. 1999. (Also available in
Spanish)
Books for children
Although these books are intended for children, younger kids
are helped more when an adult reads with and helps the child reflect
about what different parts of the book mean to the child.
Chemo,
Craziness and Comfort: My Book about Childhood Cancer by
Nancy Keene. Candlelighters Childhood Cancer Foundation, 2002. Can be
ordered from www.candlelighters.org. For ages 6 to 12.
Childhood
Cancer Survivors: A Practical Guide to Your Future (2nd
Edition), by Kathy Ruccione, Nancy Keene, and Wendy Hobbie, 2006. For
older teens.
Going to the
Hospital, by Fred Rogers. Published by Paperstar Book.
1997. For ages 4 to 8.
Life Isn't
Always A Day at the Beach: A Book for All Children Whose Lives Are
Affected by Cancer by Pam Ganz. Published by High to Five
Publishing, 1996. Workbook for ages 6 to 10.
Little Tree: A
Story for Children with Serious Medical Problems, By Joyce
C. Mills. Magination Press, 2003. For ages 4 to 8
Me and My Marrow
by Karen Crowe. Published by Fujsawa Healthcare 1999. You can buy it as
a book, but it's also available online at:
www.meandmymarrow.com/book/toc_ie.htm. For teens.
My Book for
Kids with Cansur [sic], by Jason Gaes. Viking Penguin,
1998. My Book for Kids with Cansur: A Child's Autobiography of Hope.
For ages 4 to 8
Oncology,
Stupology…I Want to go Home! by Marilyn K.
Hershey. Butterfly Press , 1999. (Also available in Spanish) For ages 8
to 12.
The Amazing
Hannah, Look at Everything I Can Do! by Amy Klett.
Candlelighters Childhood Cancer Foundation, 2002. (Also available in
Spanish) For ages 1 to 6.
What About Me?
When Brothers and Sisters Get Sick, by Allan Peterkin and
Frances Middendorf. Magination Press, 1992. For brothers and sisters
ages 4 to 8 of a child with cancer.
When Someone
Has a Very Serious Illness: Children can learn to cope with loss and
change, by Marge Heegaard. Woodland Press, 1991. For ages
6 to 12.
Why, Charlie
Brown, Why? A Story About What Happens When a Friend is Very Ill,
by Charles M. Schultz. Ballantine Publishing Group, 1990. For ages 6 to
12.
*Inclusion on
this list does not imply endorsement by the American Cancer Society.
No matter who you are, we can help. Contact us anytime, day or
night, for information and support. Call us at 1-800-227-2345 or
visit www.cancer.org.
Go back to Children
Diagnosed with Cancer: Dealing with Diagnosis.
Last Medical Review: 06/02/2009
Last Revised: 06/02/2009
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