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More information from your American Cancer
Society
The following information may also be helpful to you. These
materials may be ordered from our toll-free number, 1-800-227-2345.
Books
The following books are available from the American Cancer
Society. Call us at 1-800-227-2345 to ask about costs or to place your
order.
National organizations and Web sites*
Along with the American Cancer Society, other sources of
information and support include:
AARP
Toll-free number: 1-888-687-2277
Web site: www.aarp.org
Services: Membership organization with commitment to adults over age
50, provides information on health care treatment, insurance benefits,
caregiving, and grief and loss.
Centers for
Medicare & Medicaid Services (CMS) - HHS
Toll-free number: 1-877-267-4227
TTY: 1-877-486-2048
Web site: cms.hhs.gov
(or for just Medicare info: www.medicare.gov)
Services: Answers questions about how to apply for Medicare, Medicaid,
disability, or survivor benefits. Also answers questions about coverage
for all Medicare recipients.
City of Hope
Pain/Palliative Care Resource Center (COHPPRC)
Telephone number: 626-256-4673, extension 63829
Web site: prc.coh.org
Services: Has information on palliative care and pain management, as
well as educational programs on death and dying.
Compassion and
Choices
Toll-free number: 1-800-247-7421
Web site: www.compassionandchoices.org
Services: Local referrals to pain specialists, hospice programs, and
other resources; offers patients assistance in completing living will
and advance directives, and in talking to families, friends, and health
care providers about health care wishes.
Family and
Medical Leave Act
Toll-free number: 1-866-487-9243
TTY: 1-877-889-5627
Web site: www.dol.gov/esa/whd/fmla
Services: Specific information on the Family and Medical Leave Act of
1993 (FMLA).
Family Caregiver
Alliance
Toll-free number: 1-800-445-8106
Web site: www.caregiver.org
Services: Provides information and resources on long-term caregiving;
also has searchable resource feature on their Web site, "Family Care
Navigator," which provides information on publicly-funded and private
caregiver support programs in each of the 50 states and the District of
Columbia.
Hospice
Education Institute
Toll-free number: 1-800-331-1620
Web site: www.hospiceworld.org
Services: Provides information and education about caring for the dying
and the bereaved; maintains a computer directory of hospice and
palliative care programs in the United States; and provides general
information about the principles and practices of good hospice care.
Hospice
Foundation of America
Toll-free number: 1-800-854-3402
Web site: www.hospicefoundation.org
Services: Acts as an advocate for hospice care by conducting programs
of public education and information. Has listing of hospices by
geographical area, which is available at hospicedirectory.org.
Hospice Net
Web site: www.hospicenet.org
Services: Organization working exclusively through the Internet to
provide information and support to patients facing life-threatening
illnesses and to their families and friends; also can help find a local
hospice.
Joint Commission
Toll-free number: 1-800-994-6610 (To file a complaint about an
accredited organization or program)
Web site: www.jointcommission.org
Services: Provides information on accredited hospice agencies,
including a "quality check" directory.
National
Association for Home Care and Hospice Care (NAHC)
Web site: www.nahc.org
Services: Provides a state-by-state database of phone numbers for state
home care and hospice agencies, as well as information on how to choose
a hospice.
National Family
Caregivers Association (NFCA)
Toll-free number: 1-800-896-3650
Web site: www.thefamilycaregiver.org
Services: A national, non-profit, membership association whose mission
is to support, educate, and empower family caregivers to help them
become their own advocate. Has a quarterly newsletter providing can-do
advice, helpful resources and stories about family caregivers; offers
referrals to national resources for caregivers and a bereavement kit,
for when members are no longer caregivers, to help them deal with their
grief and loss, and move on with their lives.
National Hospice
and Palliative Care Organization (NHPCO)
Toll-free number: 1-800-658-8898; in Spanish 1-877-658-8896
Web site: www.nhpco.org
Services: Provides information about hospice programs in your area;
also publishes information for consumers and has frequently asked
questions on their Web site.
Office on Aging
Phone number: 1-800-677-1116 (to learn how to reach your state's Office
on Aging)
Web site: www.eldercare.gov
Visiting Nurse
Associations of America (VNAA)
Toll-free number: 1-888-866-8773 (press "0"to speak with operator)
Web site: www.vnaa.org
Services: VNAA provides services including skilled nursing and mental
health care, hospice care, and home health care. The Web site can link
you to a VNAA office in your area.
*Inclusion on
this list does not imply endorsement by the American Cancer Society.
No matter who you are, we can help. Contact us anytime, day or
night, for cancer-related information and support. Call us at 1-800-227-2345 or
visit cancer.org.
Last Medical Review: 04/19/2009
Last Revised: 05/06/2009
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