 |
 |
 |
 |
 |
 |
 |
 |
"You feel an instant kinship on the Cancer Survivors Network. ‘Gosh, you don’t have any hair or eyebrows either? We’re in the same club!’”
— Robert Hendrickson
|
|
|
 |
 |
Strike up a conversation with Lt. Robert Hendrickson, US Coast Guard, and he's likely to shoot back a joke or two.
He has a quick wit that's greatly appreciated at the Cancer Survivors
Network (CSN) Web site, where he's an old-timer on the colon cancer discussion board. Today, he inspires hope
and cracks jokes with "newbies" and old friends alike who log onto CSN for support from others affected by cancer.
When Hendrickson first discovered CSN, however, he had very little humor or support in his own life. His diagnosis
with colon cancer at age 37 had started him on a wrenching physical and
emotional journey.
Please, Sir, May I Have a Colonoscopy?
Well before the news of his own colon cancer, however, Hendrickson's mother was diagnosed with the disease, as
had been her father before her. Concerned by the family history, the career officer—then 33 years old—went to the base
clinic to schedule a screening colonoscopy
(an exam of the colon). They told him he was too young.
"Never let them tell you you're too young!" he writes on his homepage at CSN. "Lesson learned."
About a year later, his own health problems appeared. Hendrickson began feeling unusually tired. His bathroom
habits changed. He gained weight—could it be due to a new cholesterol drug? He had heart palpitations, but tests
didn't turn up a specific heart problem. He developed a cough and by July 2001, "I couldn't walk across the room without
getting out of breath," said Hendrickson.
| |
Can Colon Cancer Be Found Early?
Colon cancer is highly curable when found early, but has few symptoms. So people at average risk
are strongly advised to begin screening tests at age 50. Those at
increased risk
due to a family history of colorectal cancer or polyps, should talk with a doctor about starting tests at a younger age
and/or being tested more frequently.
|
Finally, a blood test found significant anemia (low red blood cell levels), which probably accounted for his heart
symptoms and shortness of breath, and Hendrickson was quickly moved to the Bethesda Naval Hospital, where in
August 2001, a colonoscopy uncovered stage II colon cancer. Hendrickson tells his story now with a keen eye for the odd
or funny aspects of what was a devastating experience at the time. He notes with a chuckle that he did get a first-rate
colon exam: "The same doctor who did my colonoscopy did the President's!"
Surgery quickly followed and the medical team had to remove about two-thirds of Hendrickson’s colon. The first
words he remembers after waking up in the recovery room were hardly reassuring. "Pray with me" said the nurse on duty,
taking her patient's hand.
"This can't be good," ran through Hendrickson's mind.
Later, testing found that he carries the gene for hereditary
non-polyposis colon cancer, which explains his family's history of the disease and which may make him vulnerable to
further battles with cancer.
Freefalling
The Lieutenant's home life took a difficult turn at that time, too—his wife filed for a divorce. Hendrickson compares
those dark days to the rapid, perilous freefall of a skydiver, the time before the parachute opens.
With his wife and children remaining near Williamsburg, Virginia, Hendrickson took an apartment near the hospital in
Bethesda, Maryland and hunkered down for six months of chemotherapy. He signed the lease on September 11
("the September 11," he explained) and found himself battling cancer with no close family nearby.
Was he frightened or lonely?
"It was tough," he said. "Fortunately I found the Cancer Survivors Network and they took over for my family and friends.
Just the day-to-day support and genuine friendship and love that exudes from people at the Survivors Network was very
helpful."
Through CSN he discovered others who were hit by cancer and marital problems at the same time. He also found the physical details were easier to share in the anonymity of an Internet bulletin board. "There's no modesty with colon
cancer," he added.
Hendrickson and his friends from the colon cancer
discussion board at CSN have become a remarkable, ongoing, and colorful support group, who call themselves
the "Semi-Colons." And in 2005, they began semi-annual getaways nicknamed "Colonpalooza." (At left: a Las Vegas
sphinx, Kay Norton, Hendrickson, and Stacy Gleason.)
A Warm, Squishy Character Is Born
Hendrickson's screen name on CSN is SpongeBob—like the absorbent, bright yellow, happy-go-lucky cartoon
character. "He fits his name well," said CSN member mikew42. "He brings a lot of humor to the site and he's very
tactful, too."
Hendrickson believes that colon cancer has changed his character—and for the better, bringing him a little closer to
the soft, squishy qualities of TV's SpongeBob.
"I was what's commonly referred to as 'anal retentive,' he admitted. "I kept my emotions in check. As a military officer,
I felt I had to."
Today, Hendrickson strives to share his emotions, to be more open, and to do whatever he can to support other
people who are facing colon cancer. "When you have a disease that kills half of the people it affects, you do a lot of
self-examination," he said.
For about three years now, Hendrickson has been what cancer survivors call "NED" (no evidence of disease), but he still
participates in CSN's colon cancer discussion board as much as time allows.
"They're my good friends," he said. "They're my family. And I want to be there for people who are just starting the battle.
I drew inspiration myself from people who were farther along."
Is he mad that doctors wouldn't give him a colonoscopy when he first asked? Not today's warm and squishy Lt.
Hendrickson.
"I'm a little bit annoyed about that, but in retrospect, I can't be angry because it was ignorance," he said. "'Mea culpa'
for not taking a more active role in my medical treatment. Life goes on; you take the lesson and move forward."
What does make SpongeBob mad?
"My surgeon came into my room to see how my scar was healing, and I asked, 'Is my career as a swimsuit model
over?'" Hendrickson recalled.
"The doctor was quiet for a minute and then he said, 'I don't think you ever had a career as a swimsuit model.' Now
that made me mad."
| |
SpongeBob's Words of Wisdom
"My recurring themes [are] have a positive attitude, take charge of your own medical care, be robust in
surveillance for cancer, and that CSN is an outstanding resource to vent, share, and inspire. It was a lifesaver for me, for
sure."
|
More of Lt. Robert Hendrickson's wit and wisdom can be found at SpongeBob's
Pineapple House, his home page on the American Cancer Society's Cancer Survivors Network. Viewing
homepages on this private, secure, non-commercial Web site is free but requires registration.
Hendrickson may also be seen striking a manly pose in his swim trunks in The
2006 Colondar, a calendar developed to raise money and awareness about colon cancer in younger people.
|