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More than 85% of Americans consider themselves at least somewhat
knowledgeable about cancer, yet a substantial number of people still believe
common myths about the disease and its treatment. That's the finding from a
new American Cancer Society study published online Monday in the
journal Cancer.
The finding is disappointing, said lead researcher Ted Gansler, MD, MBA,
because it suggests many people may be basing their health care decisions on
wrong information.
Gansler and his colleagues analyzed responses from a telephone survey
of 957 US adults who said they'd never had cancer. Participants were asked how
informed they thought they were about cancer, and about personal characteristics
like age, race/ethnicity (white, African-American, Hispanic, other), gender,
income, education, and where they lived. Then they were asked whether they
agreed with 5 common cancer myths:
- "Pain medications are not effective in reducing the amount of pain people have from cancer."
- "All you need to beat cancer is a positive attitude, not treatment."
- "Treating cancer with surgery can cause it to spread throughout the body."
- "There is currently a cure for cancer but the medical industry won't tell the public about it because they make too much money treating cancer patients."
- "Cancer is something that cannot be effectively treated."
Conspiracy Theories and Fear of Surgery
About 75% of the people who took the survey either believed or were
uncertain about at least one of these incorrect statements.
"Many people donÂ’t spend a lot of time learning about specific health
problems until those conditions affect them or someone close to them," said
Gansler, who is director of medical content at ACS. "Consequently, people
recently diagnosed with cancer who want to actively participate in their healthcare
decisions often face the challenge of learning a lot of new information very quickly."
The most commonly-believed myth was that surgery could make cancer
spread. Nearly 41% of participants said this was true, and another 13% said they
weren't sure whether it was true or not. Men and people who said they weren't
very informed about cancer were most likely to believe this misstatement. People
with at least some college education were least likely to believe this claim.
In reality, though, surgery is a very effective treatment for cancer, Gansler said,
and often the first treatment a patient will get.
This myth may stem from earlier decades, when cancer detection and
treatment were less refined than they are now. In those days, cancer often
wasn't found until it was very advanced, when surgery would have been less
likely to help. People may have assumed the surgery caused the problem, giving
rise to this rumor.
"Before modern cancer screening tests, CT scans, and MRIs, exploratory
surgery was used much more often and, unfortunately, often found cancer that
was too advanced to be removed by surgery," Gansler explained. "Without
modern chemotherapy and radiation therapy, the outlook for such patients was
generally bleak. However, it is incorrect to assume that the initial surgery was
responsible this poor prognosis."
The second most-commonly held misconception was that the medical
industry is withholding a cure for cancer. More than 27% of participants agreed
with that statement, and another 14% weren't sure. People with lower education
levels were most likely to believe this conspiracy theory.
Those figures point to a certain level of distrust toward the medical
community that could be problematic, Gansler noted. If patients don't trust their
doctors, they're less likely to follow advice about cancer prevention, screening,
and treatment -- and may even put their health in danger.
But that finding may not be as dire as it seems, Gansler said.
"Although many people indicated they do not trust the 'medical industry,'
previous studies show that they have more confidence in their own doctors. So,
the number of people completely rejecting appropriate medical advice is
probably much lower than 27%."
Cancer -- and Pain -- Can Be Treated
Two of the myths in the survey were recognized as false by nearly everyone
who participated. More than 87% of people knew that cancer can be treated effectively, and 89% knew a positive attitude isn't enough to beat the disease.
However, 19% of people thought pain medications weren't effective for cancer
pain, and just over 13% weren't sure. Older people and poorer people were
especially likely to believe this statement, and college graduates were least likely.
One reason for that gap may be that poorer people simply don't have as
much access to effective pain medication, either because they can't afford it
or because pharmacies in their area don't carry the strongest medicines,
fearing break-ins by criminals and drug addicts.
"It's particularly troubling that many people may be suffering needlessly,
when studies show that cancer pain can be relieved in most cases," Gansler said.
Get the Word Out
Ideally, Gansler said, the people should be more informed about health
issues. The most important cancer information for the general public is about
prevention and early detection, since this knowledge influences decisions they
make quite often. And once someone is diagnosed with cancer, they need
access to accurate and easy-to-understand information about the disease, he
added.
"It's important for clinicians to assess how well their patients understand the
key issues about their disease and to address any misconceptions themselves
or by referring the patient to organizations that can help, such as ACS," Gansler
said. "Although the need is especially great in areas that serve low-income
populations with less education, almost everyone needs at least some help."
Citation: "Sociodemographic Determinants of Cancer Treatment Health Literacy." Published online June 27 in Cancer (August 1, 2005 print edition). First author: Ted Gansler, MD, MBA, of the American Cancer Society. ACS News Center stories are provided as a source of cancer-related
news and are not intended to be used as
press releases.
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