One of the first long-term
scientific studies of the mental health and quality of life of spouses
or partners caring for cancer patients at home suggests the role can take
an emotional toll ? especially if the patient and caregiver have a low
income or a strained relationship.
The study, which involved 148 colorectal cancer patients in the Netherlands,
found low income, a strained relationship, and isolation could lead to
risk of depression for the caregiver. However, the research also suggested
some people gain greater self-esteem from the responsibilities of caregiving,
said Mattanja Triemstra, PhD, of the Academic Medical Center in Amsterdam.
"Those caregivers with a relatively low education seemed to have a stronger
sense of competence from performing care for a loved one," explained Dr.
Triemstra, a co-author of a study published in a recent issue of the journal
Cancer (Vol. 86, No. 4).
"Perhaps they have more time for providing care, so they simply experience
more of the positive and negative aspects," she added. "They may also choose
to focus on the positive aspects as a coping mechanism. The more highly
educated caregivers may be more preoccupied with their jobs."
Several factors affect feelings
The researchers found several factors affected the caregiver?s mental
health and overall feelings about the experience, including the patient?s
level of dependency, the caregiver?s feelings of competency, whether the
caregiver tended to be involved in care tasks, and the quality of the patient-caregiver
relationship.
The study found some caregivers were plagued by isolation, which often
means there are few friends or family members to provide back-up support.
"Health care providers should be looking for these problems and mobilize
extra sources of professional home care," said Dr. Triemstra. "Doctors
and nurses should stress the positive aspects of providing care and the
importance of having adequate social support."
Advice for caregivers
Venting frustrations can help caregivers deal with the situation better,
said Hugh Stallworth, MD, MPH, national vice president, cancer risks for
the American Cancer Society (ACS). "Find another relative, a religious
person, a neighbor, someone you can trust and share your feelings with."
Caregivers also should remember to take care of themselves by eating
well and getting exercise, said Dr. Stallworth. They also should take some
time away from their responsibilities, he added. "Let another family member
or a neighbor come in for a few hours so you can get some exercise, shop,
or go to a movie. And do it without feeling guilty. You will be stronger,
better prepared to deal with your emotions afterward."
ACS News Center stories are provided as a source of cancer-related
news and are not intended to be used as
press releases.
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