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Detailed Guide: Neuroblastoma
What Should You Ask Your Child's Doctor about Neuroblastoma?

As you deal with your child's cancer and the process of treatment, you need to have frank, open discussions with your cancer care team. You should feel free to ask any question that's on your mind, no matter how minor it might seem. Among the questions you might want to ask are:

  • What is the stage (extent) of the neuroblastoma?
  • Which risk group does my child's cancer fall into? What does this mean in my child's case?
  • What else can you tell about the cancer based on the lab tests?
  • Are there any other tests that need to be done before we discuss treatment?
  • How much experience do you have treating this type of cancer?
  • What treatment choices do we have?
  • Does one type of treatment increase the chance of cure more than another?
  • Are there any clinical trials we should consider?
  • If your child were to have treatment, what would you choose? Why?
  • What are the possible side effects from treatment? What can be done for them?
  • How long will treatment last? Will any of it need to be done in a hospital?
  • How long will it take my child to recover from treatment?
  • What are the chances that the cancer will recur? What would we do if this happens?
  • Are there any long-term risks or complications from the disease or its treatment?
  • What should I do to help my child be ready for treatment?
  • What type of follow-up will my child need after treatment?
  • Is there a support group for families who are coping with neuroblastoma or childhood cancer?

Along with these sample questions, be sure to write down some of your own. For instance, you might want more information about recovery times so you can plan your school or work schedules. You may also want to ask about getting a second opinion. Keep in mind, too, that doctors are not the only ones who can give you information. Other health care professionals, such as nurses and social workers, may have the answers you seek.

Last Medical Review: 10/22/2008
Last Revised: 10/22/2008

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