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Referencias: Leucemia en niños
¿Cómo obtener más información sobre leucemia en niños?
Más información de la Sociedad Americana Contra El Cáncer
La información a continuación puede ser de utilidad para usted. Puede solicitar estos materiales en nuestro número telefónico gratuito llamando al: 1-800-227-2345.
Children Diagnosed With Cancer: Financial and Insurance Issues
Children Diagnosed With Cancer: Late Effects of Cancer Treatment
Children Diagnosed With Cancer: Returning to School
Después del diagnóstico: una guía para los pacientes y sus familias
Estudios clínicos: lo que usted necesita saber
Ley de Licencia Familiar y Médica (FMLA)
Niños diagnosticados con cáncer: cómo afrontar el diagnóstico
Niños diagnosticados con cáncer: entendimiento del sistema de atención médica
Quimioterapia: una guía para los pacientes y sus familias
Radioterapia: una guía para los pacientes y sus familias
Second Cancers Caused by Cancer Treatment
What Happened to You, Happened to Me (children's booklet)
When Your Brother or Sister Has Cancer (children's booklet)
When Your Child's Treatment Ends: A Guide for Families
Los siguientes libros están disponibles en la Sociedad Americana Contra El Cáncer. Llámenos al 1-800-227-2345 para consultar sobre los costos o para hacer su pedido.
American Cancer Society Complete Guide to Family Caregiving, Second Edition
Because... Someone I Love Has Cancer (kids' activity book)
Jacob Has Cancer: His Friends Want to Help (coloring book for a child with a friend who has cancer)
Let My Colors Out (picture book for young children)
What's Up with Richard? Medikidz Explain Leukemia (graphic novel for teens)
Organizaciones nacionales y sitios Web*
Además de la Sociedad Americana Contra El Cáncer, otras fuentes de información y apoyo para el paciente incluyen:
American Childhood Cancer Organization (anteriormente Candlelighters)
Línea sin cargo: 1-800-366-2223
Sitio Web: www.acco.org
Children's Leukemia Research Association (CLRA)
(también conocida como National Leukemia Research Association)
Teléfono: 1-516-222-1944
Sitio Web: www.childrensleukemia.org
CureSearch (National Childhood Cancer Foundation and Children's Oncology Group)
Línea sin cargo: 1-800-458-6223
Sitio Web: www.curesearch.org
Leukemia & Lymphoma Society
Línea sin cargo: 1-800-955-4572
Sitio Web: www.lls.org
Instituto Nacional del Cáncer
Línea sin cargo: 1-800-422-6237
Sitio Web: www.cancer.gov
National Children's Cancer Society, Inc.
Línea sin cargo: 1-800-532-6459
Sitio Web: www.children-cancer.org
National Dissemination Center for Children with Disabilities (NICHCY)
Línea sin cargo: 1-800-695-0285 (también para servicio de teletipo - TTY)
Sitio Web: www.nichcy.org
Starlight Children's Foundation
Teléfono: 1-310-479-1212
Sitio Web: www.starlight.org
Otras publicaciones*
Para adultos
100 Questions & Answers About Your Child's Cancer, by William L. Carroll and Jessica Reisman. Published by Jones and Bartlett Publishers, 2004.
Cancer & Self-Help: Bridging the Troubled Waters of Childhood Illness, by Mark A. Chester and Barbara K. Chesney. Published by the University of Wisconsin Press, 1995.
Care for Children and Adolescents with Cancer: Questions and Answers. National Cancer Institute, 2008. Available at: www.cancer.gov/cancertopics/factsheet/NCI/children-adolescents or call 1-800-332-8615.
Childhood Cancer: A Handbook from St Jude Children's Research Hospital, by Grant Steen and Joseph Mirro (editors). Published by Perseus Publishing, 2000.
Childhood Cancer Survivors: A Practical Guide to Your Future, by Nancy Keene, Wendy Hobbie, and Kathy Ruccione. Published by O'Reilly and Associates, 2000.
Childhood Leukemia: A Guide for Families, Friends & Caregivers (3rd Edition), by Nancy Keene. Published by O'Reilly and Associates, 2002.
Children with Cancer: A Comprehensive Reference Guide for Parents (2nd Edition), by Jeanne Munn Bracken and Pruden Pruden. Published by Oxford University Press, 2005.
Educating the Child With Cancer: A Guide for Parents and Teachers, edited by Nancy Keene. Published by the Candlelighters Childhood Cancer Foundation, 2003.
Living with Childhood Cancer: A Practical Guide to Help Families Cope, by Leigh A. Woznick and Carol D. Goodheart. Published by American Psychological Association, 2002.
Surviving Childhood Cancer: A Guide for Families, by Margo Joan Fromer. Published by New Harbinger Publications, 1998.
When Bad Things Happen to Good People, by Harold Kushner. Published by G.K. Hall, 1982.
When Someone You Love Is Being Treated for Cancer. National Cancer Institute, 2012. Available at: www.cancer.gov/cancertopics/coping/when-someone-you-love-is-treated, or call 1-800-332-8615.
Young People with Cancer: A Handbook for Parents. National Cancer Institute, 2003. Available at: www.cancer.gov/cancertopics/coping/youngpeople, or call 1-800-332-8615.
Your Child in the Hospital: A Practical Guide for Parents (2nd Edition), by Nancy Keene and Rachel Prentice. Published by O'Reilly & Associates. 1999. (Also available in Spanish.)
Libros para adolescentes y niños
Although these books are intended for children, younger kids are helped more when an adult reads with and helps the child reflect about what different parts of the book mean to the child.
The Amazing Hannah, Look at Everything I Can Do! by Amy Klett. Published by Candlelighters Childhood Cancer Foundation, 2002. For ages 1-6. (Also available in Spanish.)
Chemo, Craziness and Comfort: My Book about Childhood Cancer by Nancy Keene. Published by Candlelighters Childhood Cancer Foundation, 2002. Can be ordered from www.candlelighters.org. For ages 6-12.
Childhood Cancer Survivors: A Practical Guide to Your Future (2nd Edition), by Kathy Ruccione, Nancy Keene, and Wendy Hobbie. Published by Patient Centered Guides, 2006. For older teens.
Going to the Hospital, by Fred Rogers. Published by Paperstar Book, 1997. For ages 4-8.
Life Isn't Always A Day at the Beach: A Book for All Children Whose Lives Are Affected by Cancer by Pam Ganz. Published by High-Five Publishing, 1996. Workbook for ages 6-10.
Little Tree: A Story for Children with Serious Medical Problems, by Joyce C. Mills. Published by Magination Press, 2003. For ages 4-8.
Living Well With My Serious Illness, by Marge Heegaard. Published by Fairview Press, 2003. For ages 8-12.
Me and My Marrow, by Karen Crowe. Published by Fujsawa Healthcare, 1999. For teens.
My Book for Kids with Cansur [sic], by Jason Gaes. Published by Viking Penguin, 1998. For ages 4-8.
Oncology, Stupology…I Want to Go Home! by Marilyn K. Hershey. Published by Butterfly Press, 1999. For ages 8-12. (Also available in Spanish.)
What About Me? When Brothers and Sisters Get Sick, by Allan Peterkin and Frances Middendorf. Published by Magination Press, 1992. For brothers and sisters (ages 4-8) of a child with cancer.
When Someone Has a Very Serious Illness: Children Can Learn to Cope with Loss and Change, by Marge Heegaard. Published by Woodland Press, 1991. For ages 6-12.
Why, Charlie Brown, Why? A Story About What Happens When a Friend Is Very Ill, by Charles M. Schultz. Published by Ballantine Publishing Group, 1990. For ages 6-12.
Independientemente de quién sea usted, nosotros podemos ayudar. Comuníquese con nosotros en cualquier momento, de día o de noche, para recibir información y asistencia. Llámenos al 1-800-227-2345 o visite nuestro sitio Web en www.cancer.org.
Fecha de última actualización: 07/09/2012
Fecha de último cambio o revisión: 01/18/2013
- ¿Qué es Leucemia en niños?
- Causas, factores de riesgo y prevención
- Detección temprana, diagnóstico y clasificación por etapas
- Tratamiento contra el Leucemia en niños
- La comunicación con su médico
- Después del tratamiento
- ¿Qué hay de nuevo en la investigación sobre el Leucemia en niños?
- Otros recursos y referencias
