- Children Diagnosed With Cancer: Understanding the Health Care System
- What is comprehensive care?
- What is a Comprehensive Cancer Center?
- Who are the members of the comprehensive health care team?
- Talking with the health care team
- Using psychosocial support services
- Programs in communities and medical centers
- Getting and keeping medical records
- To learn more
Bleyer WA. The impact of childhood cancer in the United States and the world. CA Cancer Journal for Clinicians. 1990;40:355−367.
Bracken JM. Children with Cancer: A Comprehensive Reference Guide for Parents. New York: Oxford University Press, 1986.
Children’s Oncology Group. Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers, 2008. Accessed at www.survivorshipguidelines.org/ on May 31, 2012.
Fromer MJ. Surviving Childhood Cancer: A Guide for Families. Oakland, Ca, New Harbinger Publications, 1998.
Kupst MJ, Patenaude AF. Coping with pediatric cancer. In Wiener LS, Pao M, Kazak AE, et al (Eds.). Quick Reference for Pediatric Oncology Clinicians: The Psychiatric and Psychological Dimensions of Pediatric Cancer Symptom Management. Charlottesville, VA, 2009: IPOS Press: 130−139.
Janes-Hodder H, Keene N, Hodder HJ. Childhood Cancer: A Parent’s Guide to Solid Tumor Cancer. Sebastopol, Ca, O’Reilly & Associates, 1999.
Keene N. Childhood Leukemia: A Guide for Families, Friends & Caregivers. Cambridge, Mass: O’Reilly & Associates, 1997.
Keene N, Prentice R. Your Child in the Hospital: A Practical Guide for Parents. Cambridge, Mass: O’Reilly & Associates, 1997.
Lauria MM, Hockenberry-Eaton M, Pawletko TM, Mauer A. Psychosocial protocol for childhood cancer: A conceptual model. Cancer. 1996;78.
Lozowski-Sullivan S. Know Before You Go: The Childhood Cancer Journey. Bethesda, Md: The Candlelighters Childhood Cancer Foundation, 1998.
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National Cancer Institute. Fact Sheet: Care for Children and Adolescents with Cancer. Accessed at www.cancer.gov/cancertopics/factsheet/NCI/children-adolescents on May 31, 2012.
National Cancer Institute. Pediatric supportive care (PDQ®). Accessed at www.cancer.gov/cancertopics/pdq/supportivecare/pediatric/HealthProfessional on May 31, 2012.
Steen RG, Mirro J (editors). Childhood Cancer: A Handbook from St. Jude Children’s Research Hospital. Cambridge, Mass. Perseus Publishing, 2000.
Last Medical Review: 07/02/2012
Last Revised: 07/02/2012