National organizations and websites*
Along with your American Cancer Society, other sources of information and support include:
Lymphology Association of North America (LANA)
Website lists LANA therapists who specialize in treating lymphedema
National Lymphedema Network (NLN)
Toll-free number: 1-800-541-3259
Has patient information on reducing risk and managing lymphedema, offers a pen pal/net pal program, conferences, support group info, and a way to search for professionals who work with people who have lymphedema
Lymphatic Education & Research Network (LE&RN)
Phone number: 516-625-9675
Website has information on lymphedema and an Ask the Experts section where you can get specific questions answered. Also offers monthly live-stream webcasts on lymphedema research and treatment, as well as regular newsletters on advances in the field.
Hayes SC, Johansson K, Stout NL, et al. Upper-body morbidity after breast cancer: incidence and evidence for evaluation, prevention, and management within a prospective surveillance model of care. Cancer. 2012;118(8 Suppl):2237-2249.
National Lymphedema Network Advisory Committee. Position Statement of the National Lymphedema Network. Topic: Exercise. Updated November 2013. Accessed at www.lymphnet.org/pdfDocs/nlnexercise.pdf on June 9, 2015.
National Lymphedema Network Advisory Committee. Position Statement of the National Lymphedema Network. Topic: Lymphedema Risk Reduction Practices. May 2012. Accessed at www.lymphnet.org/pdfDocs/nlnriskreduction.pdf on June 9, 2015.
Last Revised: 07/10/2015