To learn more about lymphedema
National organizations and websites*
Along with your American Cancer Society, other sources of information and support include:
Lymphology Association of North America (LANA)
Website lists therapists, nurses, and doctors who specialize in treating lymphedema
National Lymphedema Network (NLN)
Toll-free number: 1-800-541-3259
Has patient information on reducing risk and managing lymphedema, offers support and a way to search for professionals who work with people who have lymphedema
Lymphatic Education & Research Network (LE&RN)
Phone number: 1-516-625-9675
Website has information on lymphedema and an “Ask the Experts” section where you can get specific questions answered. Also offers monthly live-stream webcasts on lymphedema research and treatment, as well as regular newsletters on advancements in the field.
Hayes SC, Johansson K, Stout NL, et al. Upper-body morbidity after breast cancer: incidence and evidence for evaluation, prevention, and management within a prospective surveillance model of care. Cancer. 2012;118(8 Suppl):2237-2249.
National Lymphedema Network Advisory Committee. Position Statement of the National Lymphedema Network. Topic: Exercise. December 2011. Accessed at www.lymphnet.org/lymphedemaFAQs/positionPapers.htm on November 12, 2012.
National Lymphedema Network Advisory Committee. Position Statement of the National Lymphedema Network. Topic: Lymphedema Risk Reduction Practices. May 2012. Accessed at www.lymphnet.org/lymphedemaFAQs/positionPapers.htm on November 12, 2012.
Stout NL, Pfalzer LA, Springer B, et al. Breast cancer-related lymphedema: comparing direct costs of a prospective surveillance model and a traditional model of care. Phys Ther. 2012;92(1):152-163.
Stout Gergich NL, Pfalzer LA, McGarvey C, et al. Preoperative assessment enables the early diagnosis and successful treatment of lymphedema. Cancer. 2008;112(12):2809-2819.
Last Medical Review: 07/03/2013
Last Revised: 07/03/2013