Ileostomy

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Intimacy and sexuality

Sexual relationships and intimacy are important and fulfilling aspects of your life that should continue after ostomy surgery. But there is a period of adjustment after surgery. Your attitude is a key factor in re-establishing sexual expression and intimacy. Sexual function in women is usually not changed, but sexual potency of men may sometimes be affected. (If so, this is usually only for a short time.) Talk to your doctor and/or ostomy nurse about any problems or concerns you or your partner might have.

Any sexuality concerns you have are best discussed openly between you and your partner. A stoma on your belly is quite a change in how you look and can make you feel anxious and self-conscious. It is likely that your partner will be anxious about sex, too, and may be afraid of hurting your stoma or dislodging the pouch. Talk to your partner about the fact that sex is not likely to harm the stoma. Try to be warm, tender, and patient with each other.

The first time you become intimate after surgery things may not go perfectly. Men may have trouble getting and keeping an erection and women sometimes have pain during sex. These problems usually get better with time. Your interest in sex is likely to return as your strength returns and you get better at managing your pouch system. Body contact during sex will usually not hurt the stoma or loosen the pouch. If the pouch or stoma covering seems to be in the way during sex, try different positions or use small pillows to take pressure off the stoma.

If possible, empty the pouch beforehand. Women may consider wearing crotchless panties, "teddies," or a short slip or nightie. Men may consider wearing a cummerbund around the midsection to secure the pouch. There are many types of pouch covers that can be purchased or you can make your own.

Ostomy surgery may present more concerns for single people. When you choose to tell that someone special depends on the relationship. Brief casual dates may not need to know. If the relationship grows and is leading to physical intimacy, your partner needs to be told about the ostomy before a sexual experience.

For more information, see our documents Sexuality for the Man With Cancer, or Sexuality for the Woman With Cancer.

Pregnancy

Pregnancy is possible for women who have had ileostomy surgery. But before you plan to get pregnant you should talk about it with your doctor. The ileostomy itself is not a reason to avoid pregnancy. If you are healthy, the risk during childbirth appears to be no greater than for other mothers. Of course, any other health problems must be considered and discussed with your doctor.


Last Medical Review: 03/17/2011
Last Revised: 03/17/2011