Urostomy

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More information from your American Cancer Society

We have selected some related information that may also be helpful to you. These materials may be read online or ordered from our toll-free number.

After Diagnosis: A Guide for Patients and Families (also in Spanish)

Americans With Disabilities Act: Information for People Facing Cancer

Bladder Cancer: A Detailed Guide (also in Spanish)

Caring for the Patient With Cancer At Home: A Guide for Patients and Families (also in Spanish)

Sexuality for the Man With Cancer (also in Spanish)

Sexuality for the Woman With Cancer (also in Spanish)

National organizations and websites*

Wound, Ostomy and Continence Nurses Society (WOCN)
Toll-free number: 1-888-224-9626
Website: www.wocn.org

    The WOC nurse is a specialist in ostomy care and rehabilitation. These nurses care for and teach people with ostomies, coordinate patient care, teach nursing staff in hospitals and clinics, and work closely with the nursing and medical professions to improve the quality of ostomy rehabilitation programs. The WOCN Society can help you find a WOC nurse in your area. The “Patient Information” section of their website contains resources for patients and families.

United Ostomy Associations of America, Inc. (UOAA)
Toll-free number: 1-800-826-0826
Website: www.ostomy.org

    For local support group information; the interactive website includes discussion boards and online support groups

International Ostomy Association (IOA)
Website: www.ostomyinternational.org

    Advocates for and outlines the rights of ostomates worldwide

C3Life.com
Website: www.c3life.com

    A web-only resource that offers information on ostomies, blogs, discussion forums, and more

GreatComebacks
Website: www.greatcomebacks.com

    Has inspirational stories and support groups; offers hope to others facing life changing disease and transitioning to a new life after ostomy surgery.

Osto Group
Toll-free number: 1-877-678-6690
Website: www.ostogroup.org

    A non-profit organization that accepts donations of unused ostomy products and provides products to uninsured people for the cost of shipping and handling.

Centers for Medicare & Medicaid Services (CMS)
Toll-free number: 1-800-633-4227
TTY: 1-877-486-2048
Website: www.cms.hhs.gov

    Ostomy care and supplies are covered under part B of Medicare. These same supplies and care may be covered under Medicaid (this is state regulated and varies). Check with an ostomy nurse about which health department or other agency in your state may be able to help you.

*Inclusion on this list does not imply endorsement by the American Cancer Society.

No matter who you are, we can help. Contact us anytime, day or night, for information and support. Call us at 1-800-227-2345 or visit www.cancer.org.

In its original form this document was written by the United Ostomy Association, Inc. (1962-2005) and reviewed by Jan Clark, RNET, CWOCN and Helen DuBois, RNET. It has since been updated and modified by the American Cancer Society.

References

Emory University Wound, Ostomy & Continence Nursing Education Program: Ostomy and Continent Diversions Module. Nursing Management of Patients with Standard Urinary Diversions. September 2008. Pages 111-119.

National Institute of Diabetes and Digestive and Kidney Diseases, National Institutes of Health. Urinary Diversion. Accessed at http://kidney.niddk.nih.gov/kudiseases/pubs/urostomy/ on November 19, 2014.

United Ostomy Associations of America, Inc. Continent Urostomy Guide. 2009. Accessed at www.ostomy.org/ostomy_info/pubs/ContinentUrostomyGuide.pdf on November 19, 2014.

United Ostomy Associations of America, Inc. Urostomy Guide. 2011. Accessed at www.ostomy.org/uploaded/files/ostomy_info/UrostomyGuide.pdf?direct=1 on November 19, 2014.

Wound Ostomy Continence Nurses (WOCN) Society. Basic Ostomy Skin Care. 2007. Accessed at www.ostomy.org/uploaded/files/ostomy_info/wocn_basic_ostomy_skin_care.pdf?direct=1 on November 21, 2014.


Last Medical Review: 12/02/2014
Last Revised: 12/02/2014