- What is a urostomy?
- How the urinary system works
- Types of urostomies
- Choosing a pouching system
- Managing your urostomy
- Ordering and storing urostomy supplies
- Caring for a urostomy
- Avoiding and managing urostomy problems
- If you are hospitalized while you have a urostomy
- Living with a urostomy
- Telling others about your urostomy
- What to wear when you have a urostomy
- What to eat when you have a urostomy
- Returning to work after urostomy surgery
- Intimacy and sexuality when you have a urostomy
- Playing sports and staying active with a urostomy
- Traveling with a urostomy
- For parents of children with urostomies
- Getting help, information, and support
- To learn more
What is a urostomy?
A urostomy is an opening in the belly (abdominal wall) that’s made during surgery. It re-directs urine away from a bladder that’s diseased or not working as it should. The bladder is either bypassed or removed. (Surgery to remove the bladder is called a cystectomy.) After this surgery, urine is passed out of the body through an opening on the belly called a stoma. A Wound Ostomy Continence nurse (WOCN or WOC nurse) or the surgeon will figure out the best location for your stoma. (A WOC nurse is a specially trained registered nurse who takes care of and teaches ostomy patients. This nurse may also be called an ostomy nurse.)
The stoma will look pink to red and will be moist and shiny. The shape will be round to oval, and it will shrink over time after surgery. Some stomas may stick out a little, while others are flush with the skin.
You won’t be able to start or stop urine coming out through the stoma, so a pouch will be needed to collect the urine as it comes out. There are no nerve endings in the stoma, so it’s not a source of pain or discomfort.
A urostomy is not a disease, but a change in the way your body works. It surgically changes the way urine comes out of your body.
Why might a urostomy be needed?
Urostomy surgery is done when certain diseases and conditions cause serious bladder problems.
If there’s cancer in the bladder, all or part of the bladder may be removed and the urine detoured through a urostomy. This may cure the cancer.
Some people find a urostomy easier to manage than a defective bladder that may have been caused by something like a birth defect, surgery, or spinal injury. Bladder problems often mean that people can’t control the flow of urine – they are incontinent. This can be embarrassing and the constant wetting may cause skin problems. Some young people have even asked for urostomy surgery as a way to end this problem.
Some children are born with a defect in the urinary tract that causes urine to back up into the kidneys. This leads to chronic or repeat infections. For these children, a urostomy may be life-saving. Surgery can make a pathway through which the urine may travel easily, without any blockages (or obstructions) that cause it to back up. This allows the kidneys to work their best.
Getting ready for surgery
As you get ready for abdominal surgery, your doctor and/or ostomy nurse will explain the process and look at your abdomen to find the best location for the stoma. You may be asked to wear a sample pouch to make sure that the place chosen is on the flattest possible surface and that you are comfortable in all positions. If you have any hobbies or habits that might be affected by the placement of the pouch, talk to the doctor or the ostomy nurse.
Talking with someone who has gone through the same experience can help, too. Look for an ostomy visitor program in your area. This is a program that matches you with a volunteer from the United Ostomy Association of America who has a urostomy and has adapted well to the changes that it brings. He or she can answer many of your questions about day-to-day life. You may also find it helpful to take part in an ostomy support group. A support group allows you to share your feelings and ask questions as you recover and adjust to your urostomy. You can also share your story with others who may be helped by your experience.
Last Medical Review: 12/02/2014
Last Revised: 12/02/2014