To learn more
Other national organizations and websites*
Wound, Ostomy and Continence Nurses Society (WOCN)
Toll-free number: 1-888-224-9626
The WOC nurse is a specialist in ostomy care and rehabilitation. These nurses care for and teach people with ostomies, coordinate patient care, teach nursing staff in hospitals and clinics, and work closely with the nursing and medical professions to improve the quality of ostomy rehabilitation programs. The WOCN Society can help you find a WOC nurse in your area. The “Patient Information” section of their website contains resources for patients and families.
United Ostomy Associations of America, Inc. (UOAA)
Toll-free number: 1-800-826-0826
For local support group information; the interactive website includes discussion boards and online support groups
International Ostomy Association (IOA)
Advocates for and outlines the rights of ostomates worldwide
A web-only resource that offers information on ostomies, blogs, discussion forums, and more
Has inspirational stories and support groups; offers hope to others facing life changing disease and transitioning to a new life after ostomy surgery.
Toll-free number: 1-877-678-6690
A non-profit organization that accepts donations of unused ostomy products and provides products to uninsured people for the cost of shipping and handling.
Centers for Medicare & Medicaid Services (CMS)
Toll-free number: 1-800-633-4227
Ostomy care and supplies are covered under part B of Medicare. These same supplies and care may be covered under Medicaid (this is state regulated and varies). Check with an ostomy nurse about which health department or other agency in your state may be able to help you.
No matter who you are, we can help. Contact us anytime, day or night, for information and support. Call us at 1-800-227-2345 or explore www.cancer.org.
Emory University Wound, Ostomy & Continence Nursing Education Program: Ostomy and Continent Diversions Module. Nursing Management of Patients with Standard Urinary Diversions. September 2008. Pages 111-119.
National Institute of Diabetes and Digestive and Kidney Diseases, National Institutes of Health. Urinary Diversion. Accessed at http://kidney.niddk.nih.gov/kudiseases/pubs/urostomy/ on November 19, 2014.
United Ostomy Associations of America, Inc. Continent Urostomy Guide. 2009. Accessed at www.ostomy.org/ostomy_info/pubs/ContinentUrostomyGuide.pdf on November 19, 2014.
United Ostomy Associations of America, Inc. Urostomy Guide. 2011. Accessed at www.ostomy.org/uploaded/files/ostomy_info/UrostomyGuide.pdf?direct=1 on November 19, 2014.
Wound Ostomy Continence Nurses (WOCN) Society. Basic Ostomy Skin Care. 2007. Accessed at www.ostomy.org/uploaded/files/ostomy_info/wocn_basic_ostomy_skin_care.pdf?direct=1 on November 21, 2014.
- What is a urostomy?
- How the urinary system works
- Types of urostomies
- Choosing a pouching system
- Managing your urostomy
- Ordering and storing urostomy supplies
- Caring for a urostomy
- Avoiding and managing urostomy problems
- If you are hospitalized while you have a urostomy
- Living with a urostomy
- Telling others about your urostomy
- What to wear when you have a urostomy
- What to eat when you have a urostomy
- Returning to work after urostomy surgery
- Intimacy and sexuality when you have a urostomy
- Playing sports and staying active with a urostomy
- Traveling with a urostomy
- For parents of children with urostomies
- Getting help, information, and support
- To learn more
In its original form this document was written by the United Ostomy Association, Inc. (1962-2005) and reviewed by Jan Clark, RNET, CWOCN and Peg Grover, RNET. It has since been modified and updated by:
Last Medical Review: December 2, 2014 Last Revised: December 2, 2014