What It Takes to Be a Caregiver

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References

To learn more about caregiving and coping

The following related information may also be helpful to you. These materials may be ordered from our toll-free number, 1-800-227-2345.

About caregiving

What You Need to Know as a Cancer Caregiver

Caring for the Patient With Cancer at Home (also in Spanish)

Distress Checklist for Caregivers

Coping Checklist for Caregivers

Coping with cancer and treatment

After Diagnosis: A Guide for Patients and Families (also in Spanish)

Distress in People With Cancer

Anxiety, Fear, and Depression (also in Spanish)

Choosing a Doctor and a Hospital (also in Spanish)

Talking With Your Doctor (also in Spanish)

Understanding Chemotherapy: A Guide for Patients and Families (also in Spanish)

Understanding Radiation Therapy (also in Spanish)

Surgery (also in Spanish)

Nutrition for the Person With Cancer During Treatment (also in Spanish)

Sexuality for the Man With Cancer (also in Spanish)

Sexuality for the Woman With Cancer (also in Spanish)

Advanced Cancer (also in Spanish)

Children and family members

Helping Children When a Family Member Has Cancer: Dealing With Diagnosis (also in Spanish)

Helping Children When a Family Member Has Cancer: Dealing With Treatment (also in Spanish)

Where to Turn - Patient and Family Support Program (brochure)

Job, insurance, money, and legal issues

Financial Guidance for Cancer Survivors and Their Families: In Treatment (also in Spanish)

Health Insurance and Financial Assistance for the Cancer Patient (also in Spanish)

Family and Medical Leave Act (FMLA)

Americans with Disabilities Act: Information for People Facing Cancer

What is COBRA?

Advance Directives

Books

The following books are available from the American Cancer Society. Call us at 1-800-227-2345 to ask about costs or to place your order:

Cancer in the Family

Caregiving: A Step-by-Step Resource for Caring for the Person With Cancer at Home

Couples Confronting Cancer: Keeping Your Relationship Strong

Crossing Divides: A Couple’s Story of Cancer, Hope, and Hiking Montana’s Continental Divide

What Helped Get Me Through: Cancer Patients Share Wisdom and Hope

What to Eat During Cancer Treatment

National organizations and Web sites*

Along with the American Cancer Society, other sources of information and support include:

Family Caregiver Alliance (FCA)/National Center on Caregiving
Toll-free number: 1-800-445-8106
Web site: www.caregiver.org

    For free information and resources on long-term caregiving

National Alliance for Caregiving (NAC)
Web site: www.caregiving.org

    Provides information and other resources focused on caregiving issues, as well as www.familycaregiving101.org, a source of answers, new ideas, and helpful advice for caregivers.

National Family Caregivers Association (NFCA)
Toll-free number: 1-800-896-3650
Web site: www.thefamilycaregiver.org

    Offers a free caregiver welcome kit and www.lotsahelpinghands.com – a volunteer coordination service for friends, family, colleagues, and neighbors to help loved ones in need. The program lets a chosen “coordinator” and helpers sign up on an easy-to-use, private group calendar to help with meals, rides, and other tasks needed for life to run smoothly during a crisis.

Well Spouse Association (WSA)
Toll-free number: 1-800-838-0879
Web site: www.wellspouse.org

    A national, non-profit membership organization (dues are charged) which provides emotional support for spouses and partners of chronically ill and/or disabled people.

Cancer Support Community (was Gilda's Club)
Toll-free number: 1-888-793-9355
Web site: www.cancersupportcommunity.org

    Provides support for those living with cancer and their loved ones. Offers information, stress management, and online support groups led by professionals, including some in Spanish; has a special subsite (http://grouploop.org/) for teens and parents.

CancerCare
Toll-free number: 1-800-813-4673
Web site: www.cancercare.org

    Free professional support, such as phone counseling, online support groups, and educational materials, for people with cancer, their loved ones, and caregivers. Also offers CancerCare for Kids at www.cancercareforkids.org or CancerCare’s main number, above. This program is for kids with a parent, sibling, or other family member who has cancer. It offers practical support, education, and counseling to parents and children.

American Association for Marriage and Family Therapy
Telephone: 1-703-838-9808
Web site: www.aamft.org

    Sponsors www.therapistlocator.net which provides referrals to local marriage and family therapists. The site also contains educational materials on helping couples live with illness, as well as other issues related to families and health.

Cancer Hope Network
Toll-free number: 1-877-467-3638
Web site: www.cancerhopenetwork.org

    Volunteers provide free and confidential one-on-one telephone support for people with cancer and family members.

Cancer Legal Resource Center
Toll-free number: 1-866-843-2572
TTY: 213-736-8310
Web site: www.disabilityrightslegalcenter.org/about/cancerlegalresource.cfm

    A non-profit program of the Disability Rights Legal Center offering free and confidential information and resources on cancer-related legal issues to cancer survivors, their families, friends, employers, health care professionals, and others coping with cancer.

National Cancer Institute
Toll-free number: 1-800-422-6237
TTY: 1-800-332-8615
Web site: www.cancer.gov

    An excellent source of up-to-date information about cancer for patients and their families.

*Inclusion on this list does not imply endorsement by the American Cancer Society.

No matter who you are, we can help. Contact us anytime, day or night, for information and support. Call us at 1-800-227-2345 or visit www.cancer.org.


Last Medical Review: 02/14/2012
Last Revised: 03/23/2012