Getting help, information, and support
There are many ways to better understand and manage life with a urostomy. Your doctor and ostomy nurse are important sources of information and support. A lot of information can also be found on various websites, such as those listed in the “To learn more” section.
Taking part in an ostomy support group can be very helpful. It allows you to share your feelings and ask questions as you learn to live with your urostomy. It also lets you share your successes with others who may need the benefit of your experience. Most ostomy visitor programs and support groups are sponsored by local chapters of the United Ostomy Associations of America (UOAA).
A number of cancer centers have ostomy rehabilitation programs which include all types of ostomies, whether or not they are caused by cancer. Ask about services that may be available, such as educational pamphlets, ostomy supplies for people without insurance coverage, or help contacting the local UOAA chapter. You can also contact the American Cancer Society (1-800-227-2345) for information on ostomy support groups.
- What is a urostomy?
- How the urinary system works
- Types of urostomies
- Choosing a pouching system
- Managing your urostomy
- Ordering and storing urostomy supplies
- Caring for a urostomy
- Avoiding and managing urostomy problems
- If you are hospitalized while you have a urostomy
- Living with a urostomy
- Telling others about your urostomy
- What to wear when you have a urostomy
- What to eat when you have a urostomy
- Returning to work after urostomy surgery
- Intimacy and sexuality when you have a urostomy
- Playing sports and staying active with a urostomy
- Traveling with a urostomy
- For parents of children with urostomies
- Getting help, information, and support
- To learn more
In its original form this document was written by the United Ostomy Association, Inc. (1962-2005) and reviewed by Jan Clark, RNET, CWOCN and Peg Grover, RNET. It has since been modified and updated by:
Last Medical Review: December 2, 2014 Last Revised: December 2, 2014