What Should You Ask Your Doctor About Kaposi Sarcoma?

As you cope with Kaposi sarcoma (KS) and its treatment, you need to have honest, open discussions with your doctor. You should ask any question on your mind no matter how small it might seem. Here are some questions you might want to ask. Keep in mind that nurses, social workers, and other members of the treatment team might also be able to answer many of your questions.

  • Has my cancer spread beyond the skin? Has it spread to lymph nodes or other organs?
  • What is my CD4 count and should I be doing anything to try to increase it?
  • Are there any other infections contributing to my condition?
  • For AIDS-related KS, is my HIV viral load controlled?
  • Are there other tests that need to be done before we can decide on treatment?
  • Are there other doctors I need to see?
  • How much experience do you have treating this type of cancer?
  • What are my treatment choices? What do you recommend? Why?
  • What is the goal of the treatment?
  • How long will treatment last? What will be done? Where will it be done?
  • What are the risks or side effects of treatment? How long are they likely to last?
  • How will treatment affect my daily activities?
  • What should I do to be ready for treatment?
  • Based on what you’ve learned about my cancer, what is my prognosis (outlook)?
  • What will we do if the treatment doesn’t work or if the lesions recur?
  • What type of follow-up will I need after treatment?
  • Where can I find more information and support?

Along with these sample questions, be sure to write down some of your own. For instance, you might want more information about second opinions or if you qualify for any clinical trials.

The American Cancer Society medical and editorial content team
Our team is made up of doctors and master's-prepared nurses with deep knowledge of cancer care as well as journalists, editors, and translators with extensive experience in medical writing.

Last Medical Review: August 8, 2014 Last Revised: February 9, 2016

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