Questions to Ask Your Doctor About Chronic Myelomonocytic Leukemia (CMML)

If you’ve been diagnosed with chronic myelomonocytic leukemia (CMML), it is important to have frank, open, and honest discussions with your doctor about your condition. Your doctor and the rest of your cancer care team want to answer all of your questions.

Below is a list of questions to consider asking about your CMML.

When you’re told you have CMML

• How sure are you about the diagnosis of CMML?
• Can you explain what CMML is?
• Do I need any other tests before we can decide on treatment?
• Do I need to see any other types of doctors?
• Which risk group does my CMML fall into? How might this affect my prognosis and treatment options?
• Are there other factors that could affect my outlook or treatment options?
• If I’m concerned about the costs and insurance coverage for my diagnosis and treatment, who can help me?

When deciding on a treatment plan

• How much experience do you have treating CMML?
• What treatment choices do I have?
• Do we need to start treatment right away?
• Which treatment, if any, do you recommend? Why?
• What is the goal of this treatment?
• Should I get a second opinion before starting treatment? Can you suggest a doctor or cancer center?
• What should I do to be ready for treatment?
• How long will treatment last? What will it be like? Where will it be done?
• What are the risks or side effects of the treatments that you recommend?
• How long are these side effects likely to last?
• Will treatment affect my daily activities?
• What is the outlook for my survival?

During and after treatment

Once treatment begins, you’ll need to know what to expect and what to look for. Not all of these questions may apply to you, but getting answers to the ones that do could be helpful.

• How will we know if the treatment is working?
• What type of follow-up will I need during and after treatment?
• Is there anything I can do to help manage side effects?
• What symptoms or side effects should I tell you about right away?
• How can I reach you on nights, holidays, or weekends?
• Do I need to change what I eat during treatment?
• Are there any limits on what I can do?
• Should I exercise? What should I do, and how often?
• Can you suggest a mental health professional I can see if I start to feel overwhelmed, depressed, or distressed?
• What would my options be if the treatment isn’t working?
• Where can I find more information and support?

Along with these sample questions, be sure to write down any others you want to ask. For example, you might want to ask if any clinical trials might be right for you.

Keep in mind that doctors aren’t the only ones who can give you information. Other health care professionals, such as nurses and social workers, can answer some of your questions. Learn more in Who Is the Cancer Care Team?