Living with a urostomy
Learning to live with a urostomy may seem like a big challenge, but it will get easier over time. Just as with any life change, having a positive outlook, patience, and a sense of humor are key.
There may be times after surgery when you feel discouraged. You may feel alone and isolated. Because the whole experience is so new to you, you may feel awkward, frustrated, and uncertain. Feeling discouraged is real and normal. You might cry, be angry, and react in ways that are unusual for you. Talking to a trusted friend, nurse, clergy, and certainly another person with a urostomy may help you work through those feelings.
Your social life can be as active as it was before surgery. You can enjoy all the things you did before, such as travel, sporting events, and eating at restaurants. The first time you go out of the house after surgery, you may feel as if everyone is staring at your pouch even though it can’t be seen under your clothes. Remember, you may feel the pouch on your body, but no one can see it.
You may also worry about your pouch filling with urine and bulging under your clothes. A quick trip to the rest room can take care of this problem. You are likely to find that you need to empty your pouch about as often as you needed to urinate before.
- What is a urostomy?
- How the urinary system works
- Types of urostomies
- Choosing a pouching system
- Managing your urostomy
- Ordering and storing urostomy supplies
- Caring for a urostomy
- Avoiding and managing urostomy problems
- If you are hospitalized while you have a urostomy
- Living with a urostomy
- Telling others about your urostomy
- What to wear when you have a urostomy
- What to eat when you have a urostomy
- Returning to work after urostomy surgery
- Intimacy and sexuality when you have a urostomy
- Playing sports and staying active with a urostomy
- Traveling with a urostomy
- For parents of children with urostomies
- Getting help, information, and support
- To learn more
In its original form this document was written by the United Ostomy Association, Inc. (1962-2005) and reviewed by Jan Clark, RNET, CWOCN and Peg Grover, RNET. It has since been modified and updated by:
Last Medical Review: December 2, 2014 Last Revised: December 2, 2014