What Should I Ask My Doctor About Lymphoma of the Skin?

It’s important to have honest, open discussions with your cancer care team. They want to answer all of your questions, no matter how minor they might seem. For instance, consider asking these questions:

• What kind of skin lymphoma do I have?
• Has my biopsy been reviewed by a pathologist who is an expert on skin lymphoma?
• How sure are you of my diagnosis?
• What is the stage (extent) of the lymphoma, and what does that mean in my case?
• Do I need any other tests before we can decide on treatment?
• Do I need to see any other doctors?
• How much experience do you have treating this type of lymphoma?
• Should I get a second opinion before starting treatment? Can you suggest someone?
• What are my treatment choices? Do we need to treat the lymphoma right away?
• What do you recommend and why?
• What is the goal of the treatment?
• What should I do to be ready for treatment?
• How long will treatment last? What will it be like? Where will it be done?
• What are the risks or side effects of the treatments you suggest?
• How will treatment affect my daily activities?
• What is my outlook for survival?
• What are the chances of the lymphoma coming back with these treatment plans?
• What would we do if the treatment doesn’t work or if the lymphoma recurs?
• What type of follow-up will I need after treatment?

Along with these sample questions, be sure to write down some of your own. For instance, you might want more information about recovery times so that you can plan your work or activity schedule. Or you might ask if you qualify for any clinical trials.

Keep in mind that doctors are not the only ones who can give you information. Other health care professionals, such as nurses and social workers, might be able to answer some of your questions. You can find out more about speaking with your health care team in Talking With Your Doctor.