Our 24/7 cancer helpline provides information and answers for people dealing with cancer. We can connect you with trained cancer information specialists who will answer questions about a cancer diagnosis and provide guidance and a compassionate ear.
Our highly trained specialists are available 24/7 via phone and on weekdays can assist through video calls and online chat. We connect patients, caregivers, and family members with essential services and resources at every step of their cancer journey. Ask us how you can get involved and support the fight against cancer. Some of the topics we can assist with include:
For medical questions, we encourage you to review our information with your doctor.
For some people with soft tissue sarcoma, treatment may remove or destroy the cancer. Completing treatment can be both stressful and exciting. You may be relieved to finish treatment, but find it hard not to worry about cancer coming back. This is a very common if you've had cancer.
For other people, the cancer may never go away completely. They might get regular treatments with chemotherapy, radiation therapy, or other therapies to try to help keep the cancer in check. Learning to live with cancer that does not go away can be difficult and very stressful.
When treatment ends, your doctors will still want to watch you closely. It's very important to go to all of your follow-up appointments. During these visits, your doctors will ask questions about any problems you have and might do exams and lab tests or x-rays and scans to look for signs of cancer or treatment side effects. Almost any cancer treatment can have side effects. Some may last for a few weeks to months, but others can last the rest of your life. This is the time for you to talk to your cancer care team about any changes or problems you notice and any questions or concerns you have.
A t first these visits may be every 3 to 6 months. After 2 to 3 years, you may go to an every 6 month schedule for another few years. You can expect at least yearly check-ups for a long time after that. Chest x-rays and other imaging tests of the place the tumor was will be done at some of these visits. This helps the doctor watch for any signs that the sarcoma has come back.
During this time, it's very important to report any new symptoms to the doctor right away so that any problems can be found early, when they're easier to treat.
Depending on the type of treatment you had, physical therapy and rehabilitation may be a very important part of recovery.
Talk with your doctor about developing a survivorship care plan for you. This plan might include:
Even after treatment, it’s very important to keep health insurance. Tests and doctor visits cost a lot, and even though no one wants to think of their cancer coming back, this could happen.
At some point after your cancer treatment, you might see a new doctor who doesn’t know your medical history. It’s important to keep copies of your medical records to be able to give your new doctor the details of your diagnosis and treatment. Learn more in Keeping Copies of Important Medical Records.
If you have (or have had) a soft tissue sarcoma, you probably want to know if there are things you can do that might lower your risk of the cancer growing or coming back, such as exercising, eating a certain type of diet, or taking nutritional supplements. Unfortunately, it’s not yet clear if there are things you can do that will help.
Adopting healthy behaviors such as not smoking, eating well, getting regular physical activity, and staying at a healthy weight might help, but no one knows for sure. However, we do know that these types of changes can have positive effects on your health that can extend beyond your risk of soft tissue sarcoma or other cancers.
So far, no dietary supplements (including vitamins, minerals, and herbal products) have been shown to clearly help lower the risk of soft tissue sarcoma progressing or coming back. This doesn’t mean that no supplements will help, but it’s important to know that none have been proven to do so.
Dietary supplements are not regulated like medicines in the United States – they do not have to be proven effective (or even safe) before being sold, although there are limits on what they’re allowed to claim they can do. If you’re thinking about taking any type of nutritional supplement, talk to your health care team. They can help you decide which ones you can use safely while avoiding those that might be harmful.
If the cancer does recur at some point, your treatment options will depend on where the cancer is located, what treatments you’ve had before, and your health. For more information on how recurrent cancer is treated, see Treatment of Soft Tissue Sarcomas, by Stage.
For more general information on recurrence, you may also want to see Understanding Recurrence.
People who’ve had a soft tissue sarcoma can still get other cancers. In fact, sarcoma survivors are at higher risk for getting some other types of cancer. Learn more in Second Cancers After Soft Tissue Sarcoma
Some amount of feeling depressed, anxious, or worried is normal when cancer is a part of your life. Some people are affected more than others. But everyone can benefit from help and support from other people, whether friends and family, religious groups, support groups, professional counselors, or others. Learn more in Life After Cancer.
Our team is made up of doctors and oncology certified nurses with deep knowledge of cancer care as well as journalists, editors, and translators with extensive experience in medical writing.
National Comprehensive Cancer Network, Clinical Practice Guidelines in Oncology (NCCN Guidelines®), Soft Tissue Sarcoma, Version 1.2018 -- October 31, 2017. Accessed at www.nccn.org/professionals/physician_gls/pdf/sarcoma.pdf on April 4, 2018.
Last Revised: April 6, 2018
Donate now so we can continue to provide access to critical cancer information, resources, and support to improve lives of people with cancer and their families.